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Autistic Inpatient

AnnieApple20

Hi there,

I am the parent to an autistic young person who has been an inpatient for several years.

To cut a very long story short they are stuck in the system. 

They have long periods of being settled and risk free , however because of the restricted and unpredictable environment they have moments of meltdown, this causes them to harm themselves. 

I do believe their behaviours are due to the non structured environment without any meaningful activities for them. They are currently struggling with executive dysfunction and are sleeping mostly throughout the day. I have asked for support for them from the hospital, however it is falling on deaf ears.  

My questions are: 

Is anyone else going through this?

What support or advice can anyone offer?

Is there any support to help get my young person back home?

I understand my role as 'nearest relative' however I feel I need to pick the right time to appeal their section. 

Can anyone offer any words of wisdom/advice?

Many thanks

Annie x

Parents

  • Good morning from America, AnnieApple20.

    I don’t have much in terms of advice, so my main reason to comment is to bump this to the top of the forum in case there is someone with better words of wisdom. I’m not very familiar with the UK medical system, but I do have first hand experience with suicidal ideation. *TW* ahead

    The best way to support your young person at home is to make a plan. Meltdowns will happen and self harm might be the consequence of it. So what are we going to do to stop it before it gets too bad? For me, two things we have done is rid the house of anything that can be used for self harm (in my case, it was extension cords) and create a system I have to go through when I feel SI coming on. I have to call my wife, if I can’t my friend, if I can’t 988 (our suicide hotline) if I can’t then I need to check myself into a hospital. Since we started this process I have gotten to the 988 point, but never farther. Having a predictable plan set in place like that and one that they promise to uphold as best as they can could be a big help in preventing it from getting too far.

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  • Good morning from America, AnnieApple20.

    I don’t have much in terms of advice, so my main reason to comment is to bump this to the top of the forum in case there is someone with better words of wisdom. I’m not very familiar with the UK medical system, but I do have first hand experience with suicidal ideation. *TW* ahead

    The best way to support your young person at home is to make a plan. Meltdowns will happen and self harm might be the consequence of it. So what are we going to do to stop it before it gets too bad? For me, two things we have done is rid the house of anything that can be used for self harm (in my case, it was extension cords) and create a system I have to go through when I feel SI coming on. I have to call my wife, if I can’t my friend, if I can’t 988 (our suicide hotline) if I can’t then I need to check myself into a hospital. Since we started this process I have gotten to the 988 point, but never farther. Having a predictable plan set in place like that and one that they promise to uphold as best as they can could be a big help in preventing it from getting too far.

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