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Explaining pain

TheCatWoman

I've got a form to fill in from the pain clinic and it asks me to grade my pain from 1-10 with 10 be the worst pain I can imagine. Can I imagine anything more painful thatn childbirth or waking up from surgery, with my middle sewn up and no pain killers, well no I can't, but theres no where on the form to put this. The form's a bit crap as it has very little space for me to write anything, like the massive side effects from all pain killers except paracetamol and even they upset my tummy after 3 or 4 days.

It dosen't help that I've been discharged by them twice before with no relief, they decided the pain in my back was to widespread for them to give me injections and although I'm going for knee, shoulder and hip pain this time I'm afraid they won't be able to help again and I will be told I'm so resourseful I could teach them stuff. I got upset and angry when they said this, I've done everything I can for 30 odd years to stay out of a wheelchair and now when I ask for help, theres nothing they can do, or will do or consider.

Parents

  • I have never understood scoring systems like this. I'm unlikely to have experienced the worst pain so how can I compare my pain to a pain I've never felt. And how can I remember how painful previous pains were compared to this one without experiencing them at the same time. I always want to give explanations for my answers too.

    I'm sorry you're experiencing this pain and having a difficult time getting help. Things like the medical system can be so much more difficult to navigate with autism - it can be really hard.

    I think you're right to get checked out again but I understand your frustrations with not expecting them to be of much help. I hope in this case that you're wrong and they are helpful.

Reply

  • I have never understood scoring systems like this. I'm unlikely to have experienced the worst pain so how can I compare my pain to a pain I've never felt. And how can I remember how painful previous pains were compared to this one without experiencing them at the same time. I always want to give explanations for my answers too.

    I'm sorry you're experiencing this pain and having a difficult time getting help. Things like the medical system can be so much more difficult to navigate with autism - it can be really hard.

    I think you're right to get checked out again but I understand your frustrations with not expecting them to be of much help. I hope in this case that you're wrong and they are helpful.

Children
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