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Explaining pain

TheCatWoman

I've got a form to fill in from the pain clinic and it asks me to grade my pain from 1-10 with 10 be the worst pain I can imagine. Can I imagine anything more painful thatn childbirth or waking up from surgery, with my middle sewn up and no pain killers, well no I can't, but theres no where on the form to put this. The form's a bit crap as it has very little space for me to write anything, like the massive side effects from all pain killers except paracetamol and even they upset my tummy after 3 or 4 days.

It dosen't help that I've been discharged by them twice before with no relief, they decided the pain in my back was to widespread for them to give me injections and although I'm going for knee, shoulder and hip pain this time I'm afraid they won't be able to help again and I will be told I'm so resourseful I could teach them stuff. I got upset and angry when they said this, I've done everything I can for 30 odd years to stay out of a wheelchair and now when I ask for help, theres nothing they can do, or will do or consider.

Parents

  • I can’t provide a number for that pain scoring system too, and also the one that scores for depression. I just tell them that system doesn’t work for me.

    I think there is a limit to what medicine can do regarding some types of pain such as joint pain, even for those with unlimited finances and access to the best medicine in the world. I use a combination of medication, exercise, physiotherapy, swimming and meditation to manage my pain. I have ongoing back pain and weakness following multiple vertebra fractures.  I have two joint replacements which have given me immense relief from pain, with the third not far off on the horizon.. Coincidentally, your post is timely as I’m off to the hospital for an injection into a joint tomorrow morning.

    TheCatWoman said:
    I've done everything I can for 30 odd years to stay out of a wheelchair and now when I ask for help, theres nothing they can do, or will do or consider.

    In my part of the world, there can be a reluctance to refer on for scans, tests and treatment unless people push. This has been highlighted in the news several times. The hospitals here have gone over budget, and necessary preoccupation with saving money means treatment offered is inconsistent or nonexistent. 

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  • I can’t provide a number for that pain scoring system too, and also the one that scores for depression. I just tell them that system doesn’t work for me.

    I think there is a limit to what medicine can do regarding some types of pain such as joint pain, even for those with unlimited finances and access to the best medicine in the world. I use a combination of medication, exercise, physiotherapy, swimming and meditation to manage my pain. I have ongoing back pain and weakness following multiple vertebra fractures.  I have two joint replacements which have given me immense relief from pain, with the third not far off on the horizon.. Coincidentally, your post is timely as I’m off to the hospital for an injection into a joint tomorrow morning.

    TheCatWoman said:
    I've done everything I can for 30 odd years to stay out of a wheelchair and now when I ask for help, theres nothing they can do, or will do or consider.

    In my part of the world, there can be a reluctance to refer on for scans, tests and treatment unless people push. This has been highlighted in the news several times. The hospitals here have gone over budget, and necessary preoccupation with saving money means treatment offered is inconsistent or nonexistent. 

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