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Re-assessment?

TheCatWoman

I've just found out that the clinic where I go to for "alternative" treatments such as reflexology and osteopathy has a psychologist and I'm thinking about asking if they can re-do my autism assessment. I did ask the local "support" group about it but they said there was no way that would happen as there were to many people looking for their first one. When I was diagnosed over 10 years ago, there was little known about autism in women and things have changed so much in that time, I wonder if I might be offered more help or just more clarity if I was re-diagnosed, last time I was told that I'd coped with it for 50 years and so I could carry on coping, there seemed to be no consideration of the things I can't cope with.

I'm also concerned that now I'm getting older, things may have changed or will change, places like AGEUK or it's equivalents in Wales have no knowlege or understanding of autism or I think any ND and I worry that should I have something like a head injury or stroke I will end up being wrongly diagnosed because ND wasn't taken into account.

I hear about things like Right to Choose, but don't really understand what it is or about, other than it's alternative diagnosis providers to the NHS.

Would you get re-diagnosed if you've become unhappy with the support or lack of it you got from the first one?

I'm also concerned that the DWP will want a more recent diagnosis when they move me to UC, they don't like to use a diagnosis thats more than 3 years old in case things have changed, in there eyes for the better and because they can't seem to get it through thier collective heads that you don't get "better" from something like ASC. 

Parents

  • Unless you do it privately I think your support group is correct and you'd struggle to get on a waiting list.

    Right to choose is an NHS England thing

    https://www.gov.uk/government/publications/the-nhs-choice-framework/the-nhs-choice-framework-what-choices-are-available-to-me-in-the-nhs

    I'd think your GP is the starting point. But since they can't treat ASC it would be for something else that has changed, such as depression or other clinical condition. They can do this without re-diagnosing you.

    I thought the frequent complaint seems to be that there isn't much support for non clinical issues. If you need therapy access seems limited.

    I think the benefits system is where they assess what limitations you have. If they need evidence or corroboration I assume they look to your GP.

    I am not sure a new assessment would make much difference or change things.

    The report does not typically have support level as it is recognised this may change over time. I assume supports needs are supposed to monitored outside of the diagnosis process.

    I suppose you always have the chance the new assessment will conclude you don't have ASC.

Reply

  • Unless you do it privately I think your support group is correct and you'd struggle to get on a waiting list.

    Right to choose is an NHS England thing

    https://www.gov.uk/government/publications/the-nhs-choice-framework/the-nhs-choice-framework-what-choices-are-available-to-me-in-the-nhs

    I'd think your GP is the starting point. But since they can't treat ASC it would be for something else that has changed, such as depression or other clinical condition. They can do this without re-diagnosing you.

    I thought the frequent complaint seems to be that there isn't much support for non clinical issues. If you need therapy access seems limited.

    I think the benefits system is where they assess what limitations you have. If they need evidence or corroboration I assume they look to your GP.

    I am not sure a new assessment would make much difference or change things.

    The report does not typically have support level as it is recognised this may change over time. I assume supports needs are supposed to monitored outside of the diagnosis process.

    I suppose you always have the chance the new assessment will conclude you don't have ASC.

Children
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