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Horrible letter from community mental health team [Removed by Moderator] Merseyside

Mim77

I have received a letter from them after cancelling an appointment as I couldn't face going back there. Their staff have no understanding of autism at all and they have made my mental health worse. They won't accept this or take any responsibility. The letter says it is written by 'autism experts' and isn't 'intended to be patronising'. It is written in very simple language you would use to a small child. I am a grown adult and parent, I am of normal intelligence and have no issues understanding complex information. This letter has really upset me, they have just assumed that I am not able to understand complex information and must be addressed really slowly. I almost feel like this is discrimination of some sort. The letter is unsigned.

[Subject edited by Moderator due to Online Community Rule 2: https://community.autism.org.uk/p/rules]

Parents

  • I have also found that if I make use of the National Autistic Society "My Health Passport":

    www.autism.org.uk/.../my-health-passport

    ...a new-to-me medical team will either have a good introduction to me in advance of first meeting me in person (as I send it to them by email), or, my already having provided it to them; it then makes shorter work of my needing to explain an issue I experienced with their service (as I can make reference to the relevant section of the My Health Passport).

    Sometimes it works better than others, depending upon which physical / mental health team is involved in my care - but when it works well; it is very useful.

    I update it once a year (if there is something important to add or amend).

  • in reply to DormouseAtRest_25

    I have seen these. I don't have much faith in them really. Even just telling professionals you have autism results in blank looks and silence.

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