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Horrible letter from community mental health team [Removed by Moderator] Merseyside

Mim77

I have received a letter from them after cancelling an appointment as I couldn't face going back there. Their staff have no understanding of autism at all and they have made my mental health worse. They won't accept this or take any responsibility. The letter says it is written by 'autism experts' and isn't 'intended to be patronising'. It is written in very simple language you would use to a small child. I am a grown adult and parent, I am of normal intelligence and have no issues understanding complex information. This letter has really upset me, they have just assumed that I am not able to understand complex information and must be addressed really slowly. I almost feel like this is discrimination of some sort. The letter is unsigned.

[Subject edited by Moderator due to Online Community Rule 2: https://community.autism.org.uk/p/rules]

Parents

  • I have had a nightmare with them the past three years, even though they referred me for an Autism diagnosis, it seems to have been pointless because none of their staff have any understanding of autism. I have been diagnosed with EUPD as well and have no trust now in this diagnosis, they made me do this useless therapy with a nurse who was really dismissive of me, because I am slow to process stuff too I wouldn't react when she would say these awful things and then it came to a head in my final appointment with her, she made a nasty comment implying I was weird and not like her other patients. She then took sick leave for five months and I never spoke to her again. I blamed myself as everyone always rejects me anyway, so why wouldn't she? I keep trying to explain to the team how much this has upset me and all I get told is that it's in the past. 

  • in reply to Mim77

    I thought our local cmht team were bad, *removed by moderator*

Reply Children
  • in reply to Mim77
    Mim77 said:
    You really have no clue 

    I'll break my rule and reply here - I'm sorry you are offended. Can we leave it at that?

    Iain said:
    I will leave you alone.
  • in reply to Iain

    I mean do you even have experience of mental health services? And experience of having a mental health diagnosis and life long complex trauma? Or do you just sit in your armchair or behind a keyboard giving out your advice and talking down to people. I was hoping others who have had similar experiences could maybe share so I don't feel so isolated.

    You really have no clue 

  • in reply to Iain

    I never asked for your recommendations. I asked for empathy and understanding and you tried to say I could be sued for slander. I am very vulnerable and don't need to hear that. I am intelligent and experienced enough to know that talk of slander is nonsense though ha

  • in reply to Mim77
    Mim77 said:
    I don't need to be lectured to by some know it all with an empathy bypass.

    There is no need to be insulting - I can see you are not willing to hear my recommendations so I will leave you alone.

  • in reply to Mim77

    Do you know what this forum is quite happy to let your bullying posts stay when it's obvious I am vulnerable. I don't need to be lectured to by some know it all with an empathy bypass. 

  • in reply to Iain

    It's not slander It's the TRUTH 

  • in reply to Iain

    I haven't slandered anyone. I am telling the truth as a patient of them. Perhaps they can sue me for slander. I have an ongoing complaint with the Parliamentary ombudsman they are so awful.

  • in reply to Iain

    I'm familiar with Trustpilot thanks. I don't need you to explain to me how it works. The NHS isn't a company. It is a vital service that can mean the difference between life and death for some people. If people don't get the right help or are failed, this can have serious consequences for themselves and their families. I live in a very deprived area where there are many social problems. People who should be getting the mental health support they need are turning to substances instead to cope.

    I was trying to discuss this as I think it is a serious wider issue.  Sadly you seem to have missed this.

    Please don't post again 

  • in reply to Mim77
    Mim77 said:
    NHS by the way. Hope you don't mind being corrected

    No, I was correct. I was talking about this forum protecting itself by being sued by the company you were complaining about. 

    You potentially slandered them on here and allowing it to remain would make NAS liable for hosting the slander.

    Mim77 said:
    Don't patronise me Ian. 

    I wasn't suggesting you stop posting here. The TrustPilot site is all about peoples experiences with companies - have a look if you are unclear.

    This means anyone looking for reviews of the company would potentially see your review of them.

    It is a bit like writing a product review on Amazon - it becomes almost a public information alert if there is an issue with it.

    I apologise if my comments upset you. It was intended to point you to a place you can make this point and reach people who may be considering using their service.

    Please continue as part of the community here - I'm sorry if I inadvertently upset you.

  • in reply to Iain

    I'm going to report this post for telling me I should post elsewhere. What a horrible thing to say

  • in reply to Iain

    NHS by the way. Hope you don't mind being corrected Wink 

  • in reply to Iain

    Don't patronise me Ian.  Sued for defamation don't make me laugh. You can Google the place and see all the reviews left by unhappy patients, including the mother of a man who tried to committ suicide after being discharged from one of their wards.

  • in reply to Olivia Mod

    The notification email I received said it was removed due to being 'abusive'.

  • in reply to Mim77
    Mim77 said:
    These places should be named and shamed for failing autistic people

    NAS has to protect itself against being sued by the place in question for defamation though.

    Perhaps a site like TrustPilot would be a better place to share your experience.

  • in reply to Olivia Mod

    My post was 'abusive though? 

    These places should be named and shamed for failing autistic people

  • in reply to Mim77

    Dear Mim77,

    I would like to reassure you that the post name wasn't edited due to being abusive, but as we cannot have identifiable information like this on the online community. 

    Best Wishes,

    Olivia Mod

  • in reply to gone

    Dear Cornishtographer,

    I have edited the post due to Rule 2: No personal information and identifiable content. 

    Best wishes,

    Olivia Mod

  • in reply to gone

    At least you can name them on here. My post naming them was removed for being abusive.