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Horrible letter from community mental health team [Removed by Moderator] Merseyside

Mim77

I have received a letter from them after cancelling an appointment as I couldn't face going back there. Their staff have no understanding of autism at all and they have made my mental health worse. They won't accept this or take any responsibility. The letter says it is written by 'autism experts' and isn't 'intended to be patronising'. It is written in very simple language you would use to a small child. I am a grown adult and parent, I am of normal intelligence and have no issues understanding complex information. This letter has really upset me, they have just assumed that I am not able to understand complex information and must be addressed really slowly. I almost feel like this is discrimination of some sort. The letter is unsigned.

[Subject edited by Moderator due to Online Community Rule 2: https://community.autism.org.uk/p/rules]

Parents

  • Do you agree with the technical content of the letter? If you ignore the style and simple language is it right?

    There seems to a mismatch between what they have said or done and your expectations. Perhaps they are worried you may not have understood. To make sure there is no misunderstanding they may have chosen this format.

    Or it might just have been an error.

  • in reply to Stuart333

    an error in assuming because I have autism that I have difficulty reading complex letters and must be spoken to as if I am a child or have learning disability? 

  • in reply to Mim77

    The letter is not signed so I would guess some admin person did it.

    They might not have met you, so could have made a wrong assumption. Or maybe someone ticked the wrong box saying what type of letter was appropriate.

    It might just be a careless mistake.

    If the content is correct, it seems to just be a communication problem.

    You can probably trust the EUPD diagnosis. This would have been done by someone qualified.

    I'm not telling you what to do or think, I was not there. Only to consider they might not have intended to upset you 

  • in reply to Stuart333

    EUPD is one of the most common misdiagnosis for autistic people, particularly in women. Just because someone is qualified it does not mean that their opinions are a correct representation of someone. A misdiagnosis like this can cause a lot of damage.

  • in reply to Stuart333

    Well but it says 'this letter was written by autism experts'? If they are really experts in autism why would they write such a patronising and condescending letter. Why would they make assumptions that I can't understand letters. That is what has upset me the most. Autism is a wide spectrum of all levels of intelligence. If an expert had really written it they would know not to write as if I have a learning disability.

  • in reply to Stuart333

    Right fair enough. But they have upset me, whether by malice or incompetence

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