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Horrible letter from community mental health team [Removed by Moderator] Merseyside

Mim77

I have received a letter from them after cancelling an appointment as I couldn't face going back there. Their staff have no understanding of autism at all and they have made my mental health worse. They won't accept this or take any responsibility. The letter says it is written by 'autism experts' and isn't 'intended to be patronising'. It is written in very simple language you would use to a small child. I am a grown adult and parent, I am of normal intelligence and have no issues understanding complex information. This letter has really upset me, they have just assumed that I am not able to understand complex information and must be addressed really slowly. I almost feel like this is discrimination of some sort. The letter is unsigned.

[Subject edited by Moderator due to Online Community Rule 2: https://community.autism.org.uk/p/rules]

Parents

  • So sorry to hear about the upsetting letter - particularly, poor when there is no attributed point of contact / reference as it was not signed.

    If if was from a NHS Team in the UK; you could contact PALS (Patient and Liaison Services):

    https://www.nhs.uk/service-search/other-health-services/patient-advice-and-liaison-services-pals/

    This might help progress things if your contact to date with the Team has been inappropriate / their service has not been accessible.

    I have first-hand positive experience of having contacted PALS in my area - they aided my engagement with the required team (to which I had been referred by my GP).

    While it is good to hear that other letter formats, such as Easy Read, are available to their Team, it sounds poor that an audience appropriate template was not used in your case.

Reply

  • So sorry to hear about the upsetting letter - particularly, poor when there is no attributed point of contact / reference as it was not signed.

    If if was from a NHS Team in the UK; you could contact PALS (Patient and Liaison Services):

    https://www.nhs.uk/service-search/other-health-services/patient-advice-and-liaison-services-pals/

    This might help progress things if your contact to date with the Team has been inappropriate / their service has not been accessible.

    I have first-hand positive experience of having contacted PALS in my area - they aided my engagement with the required team (to which I had been referred by my GP).

    While it is good to hear that other letter formats, such as Easy Read, are available to their Team, it sounds poor that an audience appropriate template was not used in your case.

Children