Neurodivergent adolescents & the emotional burden at school

Anna Freud (a mental health charity for children and young people) recently published material around the latest research (from the Institute of Psychiatry, Psychology & Neuroscience (IoPPN) at King’s College London, in partnership with Anna Freud and University College London) into;

"Neurodivergent adolescents experience twice the emotional burden at school compared to their neurotypical peers":

https://www.annafreud.org/news/neurodivergent-adolescents-experience-twice-the-emotional-burden-at-school/

The research conclusion highlights the potential value of using a "My Emotions in School Inventory (MESI)" to help measure the exposure of neurodivergent adolescents to emotional burden (EB).

"The ‘My Emotions in School Inventory (MESI)’ was co-produced with young people with ADHD and/or autism to measure levels of emotional burden (EB – combining frequency of exposure to common upsetting events and intensity of emotional responses to them) in adolescents."

Particularly pleasing; was the realisation that this emotional burden self-report measure for adolescents was actually co-produced with neurodivergent adolescents.  I believe that was really important.

Many people in our community here might potentially wish to be aware of and consider this research.

As a volunteer with a community service organisation (supporting adolescents) I take the opportunities, where possible, to participate in that organisation's strategy consultation process and inclusion programmes. 

I definitely intend to think further upon this research (not least because; I am all too aware that it may not actually be within the school setting that a neurodivergent young person initially chooses to share their emotional burden issues / concerns with someone and seeks some guidance or support).

Research paper:

Lukito, S., Chandler, S., Kakoulidou, M., Griffiths, K., Wyatt, A., Funnell, E., Pavlopoulou, G., Baker, S., Stahl, D., Sonuga-Barke, E. and the RE-STAR team (2025), Emotional burden in school as a source of mental health problems associated with ADHD and/or autism: Development and validation of a new co-produced self-report measure. J Child Psychol Psychiatr. https://doi.org/10.1111/jcpp.70003

The research paper website:

https://acamh.onlinelibrary.wiley.com/doi/10.1111/jcpp.70003

Or, in PDF format:

https://acamh.onlinelibrary.wiley.com/doi/epdf/10.1111/jcpp.70003

(Hoping some of the above might prove to be of interest to people in support of neurodivergent young people in their lives and communities).

Parents
  • The ‘My Emotions in School Inventory (MESI)’ was co-produced with young people with ADHD and/or autism

    It's good to read that NDs are informing the research on NDs. There was far too much research being done to confirm to NTs that we NDs are much more broken than they are. Everything had to be a "disorder", or a "deficit", or an "impairment", or an "abnormality", or a "dysfunction". We're people too. We see them use those words and we are expected to ... what? ... agree we're less worthy? ... not take it personally?

    Research like this aimed at developing tools to identify problems that can then (one hopes) be addressed with appropriate supports and accommodations is far more welcome than yet another paper on how we're not fully human.

Reply
  • The ‘My Emotions in School Inventory (MESI)’ was co-produced with young people with ADHD and/or autism

    It's good to read that NDs are informing the research on NDs. There was far too much research being done to confirm to NTs that we NDs are much more broken than they are. Everything had to be a "disorder", or a "deficit", or an "impairment", or an "abnormality", or a "dysfunction". We're people too. We see them use those words and we are expected to ... what? ... agree we're less worthy? ... not take it personally?

    Research like this aimed at developing tools to identify problems that can then (one hopes) be addressed with appropriate supports and accommodations is far more welcome than yet another paper on how we're not fully human.

Children
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