Can't Get a Break and Can't Do Anything I Like

I made a post on here a while back asking for advice dealing with the death of my father and having to move across the world. I couldn't cope with those things. I lost my beloved father to cancer. He was only 55. I was 23. Then 6 months later my mother decided that she wanted to move back to the UK. (She is British and my dad was also British.) I was born and raised in the US. But my sister and I decided because of our mental health issues and autism we were not able to live alone at that time. So we moved with our mother to the UK, which was extremely difficult and wrecked are already bad mental health. And we are still grieving the loss of our home. Since then life has only gotten worse.

Every time things start to look like they might get better they just get worse. About 1 and a half years after moving to the UK my sister and I passed my driving test and got a UK driving license, which was really difficult. And I am bitter about it because I already had a US driving license which was a struggle to get and then my mom forced us to move a go through that hell all over again. Anyway, my sister and I became more mobile because of my driving license. And we found a university near our house that offered degrees in animal management. We went on a tour of the campus and it looked good. We love animals. So we thought we'd apply and try it out. But, then about a month later my sister became very unwell. She began suffering with severe pelvic pain, which over the course of several months spread to all over her body. We tried to get help through the NHS, but they have been really unhelpful and difficult to get any help from. (She is still trying to get help from them today, but it is wait list after wait list. And crappy doctor after crappy doctor who just doesn't care or doesn't want to investigate anything.) During this time period, I became so stressed that I began having multiple panic attacks a day. I spent hours every day and night researching what might be wrong with my sister and where she could get help. She became extremely stressed and depressed and was crying on a daily basis. Because of all of this, we never applied to the university and probably never will. We also gave up our one volunteer job, which was walking dogs at a local dog shelter. We really liked it, but my sister was not well enough to do it anymore.

Things started to get a bit better again this year. My mother, my sister, and I started a board game group for autistic young adults. For the first time in years, my sister and I have made new friends. We like going to the club and playing games. But, then my mother's heart got bad. After 30 years of her heart being stable on medication, she has now gone into heart failure again. She has upped her medication and her heart is doing better but her cardiologist is still concerned. Then not long after this, my mom was diagnosed with breast cancer. It was caught early, but doctors were not sure they could even treat her at first because of her heart failure. So we weren't sure for several weeks whether she was going to die or not. Eventually she was told she could receive treatment and that with treatment, she would make a full recovery because it was caught so early. But, because we are in the UK, not near any relatives, and don't have any of the family friends we had in the US, there is no one besides my mother's new boyfriend, who can help us take care of our mom. So it has been down to my sister and I to take care of her which is not easy when my sister is still unwell, and I have tendonitis. (I have had tendonitis for 3 years now, and it is just getting worse.) Then not long after my mother's cancer diagnosis, I went for my regular heart check up. (I have a congenital heart condition.) I found out that my heart was not working properly and has gone into the early stages of heart failure. I am 27. I now have to take medication for my heart. I have been told it should keep my heart working more normally for many years, but they don't know for sure. Then not long after this, my sister got some ultrasound results back. One of her ovaries is quite enlarged and they don't know why. But no one will do anything about it. We just have to wait until her next gynecology appointment which isn't for several weeks and she's already been waiting months for it.

And, to top all of this off, I cannot do anything I like to try and cope with it all. Because of the tendonitis in my hands and arms, I cannot play video games, read books, write, bake, or draw. It's miserable and I don't know what to do anymore. It makes me want to give up on life.

I know it's a long shot. But, does anyone have any advice? How do I cope with this all?

  • Firstly, sorry for your loss. I lost my dad a couple of years ago, while I was in a really bad place.  It's a horrible place to be.

    Sorry, I've not read all of the rest; being dyslexic I find blocks to text hard to read - not your fault at all, just me. However, looking back as some words it looks like you are being dragged through Hell. Let me extend a virtual big hug, and I am sure everyone here will do the same.

    As for finding enjoyment again, it sounds like you need to give those arms a rest, but not too much!  I had something similar a year or two ago - I wore some 'armbands' for a month which fixed everything for me (https://www.amazon.co.uk/dp/B06XCN76Y2?ref_=ppx_hzsearch_conn_dt_b_fed_asin_title_2). I'm not saying these will help, but could be worth looking into. 

    You need to spend time looking after yourself, recharge, and then look after your loved ones. It's not a selfish thing to do - quite the opposite. Looking after yourself gives you so much more energy to look after your loved ones when they really need it.

  • You can contact MacMillan Cancer Support for help for both youselves and your Mum, MacMillan have nurses and carers who will come to the house. You should be able to get some help from your local authority for people to come and do things like cleaning and maybe some personal care for your Mum too. MacMillan will be able to help you with this.

    I can't give any medical advice, but there are several things that spring to mind about your sister's condition none of which are fatal, but she will be advised by her doctors.

    The British Heart Foundation can be contacted about help and advice for your Mum and yourself for your heart problems.

    You can self refer to physiotherapists on the NHS, who may be able to help you with tendonitis. 

    I'm sorry you're having such a rough time, not only are you dealing with grief and multiple health problems, but doing so in a strange country who's systems you're unfamiliar with.

    Best wishes to all of you and I hope things improve for you all soon. 

  • You certainly have had a rough time of it. I don't really know what to say. I see one detail that I might be able to make a suggestion about: reading.

    If reading books helps you to cope, but your hands are too sore to hold a paper book, try reading e-books. A device like a Kindle has a screen that is easy on the eyes and doesn't require much manual dexterity to operate. I used to read books on paper, but got out of the habit of reading for myself when I had kids. Now, with an e-reader, I'm back to reading way more than ever. When I was struggling with stuff last year, I was reading three books a week just to keep my mind occupied and give me a bit of a chance to hang in there. It helped me a lot.

    My wife was never much of a book reader until she started reading e-books on a tablet. She sits up in bed, props the tablet up on her knees, and can turn the page by making any kind of contact with the screen (knuckle, fist, or whatever). She claims now that she always thought she didn't like reading, but it turned out she didn't like holding books.

    You sound like you're really there for your family and doing your best. I hope things work out for all of you. You deserve a bit of luck.