Misdiagnosis

How do you 'get over' a misdiagnosis? They said I have Borderline Personality Disorder over 10 years ago. I got autism diagnosis privately about 9 years ago. I havent had anything to do with mh services since my autism diagnosis. These past 12 months have been hard. I've been referred to cmht. I've had the assessment. They have put personality disorder as my diagnosis. 

I'm absolutely distraught. It will never leave me and it influences how I am treated by health professionals , both mental and physical health professionals. I don't meet the criteria now and I don't believe I did then. 

Anyone been through similar and got through it? I don't think I need any 'help'from mh services as it seems nothing has changed in nearly 20 years. I'm considering private therapy if I can afford it.

Parents
  • Hon, I am so, so sorry this happened to you. It’s terrible, nobody deserves it. And while private practice may seem like a better answer, it also isn’t a perfect solution. I spent 12 years with a private childhood psychiatrist, during which I endured constant gaslighting, attempts to alienate me from my family, and multiple misdiagnoses that resulted in over a decade of improper medication administration. You are absolutely not alone. 
    the most important thing is to use whatever power of medical choice you have available to get a doctor that’s right for you. Don’t just go with the one that seems right—go with the one that understands you best, has the best background, understands your identity and perspective, and how your experiences are shaped by your life. I know this isn’t always a feasible solution, but it’s the best chance you’ve got. Advocate for yourself, and use any and all support systems you have. Recruit different members of your medical team—if you have a good, GP, sometimes that can make a world of difference. Remember, you may be a statistic or a particularly interesting money bank in the eyes of a bad doctor, but you deserve a doctor that sees you as you are—a whole human being that deserves to thrive.

    i hope things take a turn for the better. keep reaching out for support—we’re here for you.

Reply
  • Hon, I am so, so sorry this happened to you. It’s terrible, nobody deserves it. And while private practice may seem like a better answer, it also isn’t a perfect solution. I spent 12 years with a private childhood psychiatrist, during which I endured constant gaslighting, attempts to alienate me from my family, and multiple misdiagnoses that resulted in over a decade of improper medication administration. You are absolutely not alone. 
    the most important thing is to use whatever power of medical choice you have available to get a doctor that’s right for you. Don’t just go with the one that seems right—go with the one that understands you best, has the best background, understands your identity and perspective, and how your experiences are shaped by your life. I know this isn’t always a feasible solution, but it’s the best chance you’ve got. Advocate for yourself, and use any and all support systems you have. Recruit different members of your medical team—if you have a good, GP, sometimes that can make a world of difference. Remember, you may be a statistic or a particularly interesting money bank in the eyes of a bad doctor, but you deserve a doctor that sees you as you are—a whole human being that deserves to thrive.

    i hope things take a turn for the better. keep reaching out for support—we’re here for you.

Children