• Replies 7 replies
  • Subscribers 8 subscribers
  • Views 2239 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Misdiagnosis

BlueHawk

How do you 'get over' a misdiagnosis? They said I have Borderline Personality Disorder over 10 years ago. I got autism diagnosis privately about 9 years ago. I havent had anything to do with mh services since my autism diagnosis. These past 12 months have been hard. I've been referred to cmht. I've had the assessment. They have put personality disorder as my diagnosis. 

I'm absolutely distraught. It will never leave me and it influences how I am treated by health professionals , both mental and physical health professionals. I don't meet the criteria now and I don't believe I did then. 

Anyone been through similar and got through it? I don't think I need any 'help'from mh services as it seems nothing has changed in nearly 20 years. I'm considering private therapy if I can afford it.

Parents

  • Hi and welcome to the community.

    I'm sorry that you're feeling so upset.

    As you disagree with the conclusion of your recent assessment, I'd suggest contacting PALS for advice. This link provides information about how they could help you, including in respect of making a complaint, if you wish to:

    NHS - What is PALS (Patient Advice and Liaison Service)?

    Regarding therapy, you may be able to access NHS therapy services via self-referral, without needing to go through your GP or a mental health team. In England, for example, you can access therapy for anxiety and depression related to various health conditions via the instructions here:

    NHS - Talking Therapies

    Whichever route you choose to follow for therapy, you might first find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    Finally, in respect of your autism diagnosis, you might like to follow the advice here to request a support plan (perhaps from your GP, in the first instance). This NAS resource includes advice, along with a template letter that you could use for this purpose:

    NAS - Formal support following an autism diagnosis > What can I do if support is not provided?

  • in reply to Bunny

    Thank you for all the information. I don't have the energy to go through pals at the moment. I will look into it when I have the energy.

    Also I don't want to do any therapy through the nhs , especially if they can see my notes and irlf they aren't autism specific. I have someone who helps me with daily living things from an autism charity and we did an autism passport and emailed it to my gp. I don't know how it works with the computer system and what they see on their screen.

    Thank you. I will look for the book.

Reply
  • in reply to Bunny

    Thank you for all the information. I don't have the energy to go through pals at the moment. I will look into it when I have the energy.

    Also I don't want to do any therapy through the nhs , especially if they can see my notes and irlf they aren't autism specific. I have someone who helps me with daily living things from an autism charity and we did an autism passport and emailed it to my gp. I don't know how it works with the computer system and what they see on their screen.

    Thank you. I will look for the book.

Children