• Replies 19 replies
  • Subscribers 9 subscribers
  • Views 454 views
  • Users 0 members are here
Options
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Trouble sleeping

Snowdrop

I have such a difficult time of sleeping. I'm autistic and I suffer with anxiety as well, also grief after losing my sister in 2015. At some point over time I began having difficulty with sleeping. It might have been before 2015 but I noticed it most after Alice died, and since then my stresses have gotten worse what with every day life stuff going on. My stress has been a lot worse again of late, I tried working again, it didn't go well and I feel like that's set me back some what.

I've always had issues with sleeping, as a child I was infuriating my mum said because I wouldn't go to bed because I was never tired and then I woke several times every night. This continued well in to late childhood and even in to my teens. I sleep, then wake, and then sleep again, and then wake up. That has been my night routine for years. On the surface it doesn't sound much of a problem but overall it's affecting me badly - my immune system is bad now, I'm always tired, body aches and I get so much anxiety it's hard to get through the day with it.

I don't know what I'm hoping for writing this. Maybe just to know it isn't only me like this? Or some help? I don't know. Sorry, this isn't a good first post.

Parents

  • Trazodone - 50mg taken at night.

    I have spent my life unable to sleep. I just could not sleep. My GP gave me this and it finally fixed it. I take it and 30mins later I am asleep guaranteed.

    [content removed by Moderator due to breaches of the online community rules and guidelines]

  • in reply to MartinRiggs

    We would like to remind you of rule 6: 

    Rule 6: No medical or legal advice. Do not offer medical or legal advice. Always seek professional help for these matters. Treat any medical or legal information shared as the opinion of the user who posted it and meant for general discussion purposes only

    Kind Regards,
    Rosie Mod

  • in reply to Rosie Mod

    You mods realise the medical community is completely out of touch with the all the medical research on this right?? Sure, we can't give advice, but at some point we need to start arming this community with the growing body of research so we can all get the help we need. This is the only way to make change. 

Reply
  • in reply to Rosie Mod

    You mods realise the medical community is completely out of touch with the all the medical research on this right?? Sure, we can't give advice, but at some point we need to start arming this community with the growing body of research so we can all get the help we need. This is the only way to make change. 

Children
  • in reply to JuniperFromGallifrey
    JuniperFromGallifrey said:
    The post I've just spent half hour on disappeared. No medical advice

    Without prejudice.  Seems this post has already attracted attention when it was first published and therefore is likely flagged for extra vigilance. 

    Personally, I generally only comment on new posts, identified from the home page.  It is now risky to regenerate posts from the 'Related' column as they are seemingly more prone to problems. 

  • in reply to JuniperFromGallifrey

    You are absolutely not alone in that experience at the moment - there are ongoing tech team conundrums under active investigation behind the scenes. 

    What I have found, if something is important, I draft the text etc. as a draft email first.  Then if a reply post goes bang and you slide into the unintended everything moderated queue - you can retrieve the text from your email and still make an original post with it - even while stuck on the naughty step for any reply activity while awaiting moderation resolution (helpful over the weekend).

  • in reply to Iain

    The post I've just spent half hour on disappeared. No medical advice. And if someone decides there's an incorrect word? No email, no red-line, nothing. Everything I wrote - into the void. :( 

  • in reply to Iain

    I'm not suggesting anyone post anything which there isn't evidence of. Sleep deprivation is deadly. What I would love to know is where they draw the line, because I've posted some things lately and it's not even as if I get a red lined mark-up, like a lawyer would do. And the information I usually post should be common knowledge by now. 

    Blue light affects the circadian rhythm. Is it medical advice to suggest to change out lightbulbs at night? I don't spend any more money with halogens. Sleep deprivation can happen with the wrong SSRIs or anti-depressants, it's right there on the precautions. I had several discussions with someone who's undiagnosed, but has the medical markers of Autism & had been on one, slowly becoming more sleep deprived until he was dreaming while awake. He hadn't put 2 & 2 together to recognise he needed something which did the opposite & boosted GABA rather than depleted it. This can be found in all journals. You still have to speak with your GP, but there's the KEY issue of not being believed, being autistic and using language different.

    Technically, anything one could say which affects the biology would be some kind of advice along these lines even if I'm merely stating what I do, like a topical only magnesium and minding to  not take chlorella or other supplements at night which provide energy. 

    It's far from any sort of med. advice to add papers on hormone balance and sleep. Bee pollen/honey can boost testosterone, while mint, oestrogen. Stuff you can buy at Tesco. Melatonin can mess with your heart rate and should be minded but if you don't ask a GP to check, no one will ask it for you.

    Now I get it. There are parents out there harming their children with silver or other things which they don't know how to administer. But I'm a bit irritated that no one is HELPING teach how to word things just ghosting responses when careful thought has been taken.

    I found when I dropped of printed research from published journals, I managed to get further with the GP than without. 

  • in reply to JuniperFromGallifrey
    JuniperFromGallifrey said:
    at some point we need to start arming this community with the growing body of research so we can all get the help we need.

    I think this is outside the scope of what the NAS directors will allow to be topics of discussion since it can be a slippery slope to work out what is legitimate medical research and what is either fake or less ethical "research".

    There was another autism forum setup by someone here I believe as a result of the limits placed on our discussions - maybe that would be a better place to have this nature of discussion so we can point people to it if they ask - hopefully that won't break any rules here.