Pip Renewels recently - what’s your experience?

Hello everyone :)    My son receives PIP (and I realise he was very fortunate to get PIP as the system often doesn’t recognise the needs of Autistic people) and his ‘award’ runs out this year. Consequently we are facing the anxiety provoking prospect of going through the renewal process (which everyone on PIP dreads of course). 
Has anyone on here gone through a PIP renewal recently? And if so how did it go for you? How long before your award ran out did they contact you? And did they come to your home for an interview - or did you have to go to a centre of some kind?

And as an autistic person did you find the process sensitive to your needs and understanding of how autism impacts on you? And was your award maintained, reduced (or stopped completely) or increased? 

Any info regarding this subject that anyone can share I would really appreciate it as I’d like to have an idea about how things are with this at the moment so that I know what we are going to be facing. Both myself and my son are autistic and we like to know in advance what’s going to happen - as I’m sure everyone on here will understand! 
Thanks. 

Parents
  • I never got PIP,  but the assessors can be dishonest and break or bend  their own guidelines, so be forewarned they play tricks.

    With me they phoned after 4pm and gave me a choice of appointment times and dates.

    1. Tomorrow morning at 9am.
    2. Tomorrow morning at 10am.

    Not much time to get prepared or have my mental health worker to accompany me.

Reply
  • I never got PIP,  but the assessors can be dishonest and break or bend  their own guidelines, so be forewarned they play tricks.

    With me they phoned after 4pm and gave me a choice of appointment times and dates.

    1. Tomorrow morning at 9am.
    2. Tomorrow morning at 10am.

    Not much time to get prepared or have my mental health worker to accompany me.

Children
  • Thank you Robert - I definitely agree: I don’t think you can trust the assessors and their motivation. This is a shame because the system should be there to help people and be supportive - but I fear that they have an aim to NOT give help and support. I’m sorry that they made you feel rushed and didn’t give you time to prepare. Thank you for sharing your experience - that’s really kind of you and I really appreciate your thoughts on this.