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I just dont know what I have done wrong!.

Deleted User

Hi all.

I got a warning from the GP surgery not to email them and to try and engage.

However today I received a text as the email wouldnt work (I know the irony) telling me they are removing me from their list and I have to find a new GP.  TBH I dont know what I have supposed to have done wrong? I mean yeah they did call last week but didnt ask me to call them back, they say I am difficult to engage, yeah I have autism. A couple of times I couldnt make an appointment tha was booked, I always let them know. My phone might had rang when I were asleep, on the bus, away from my phone etc. So I calmed down, and called the practice I asked to speak to the manager, the receptionist wasnt very friendly which made matters worse, she said the manager's decision is final, she dont want to speak to me, thats the end of it.

Now my mental health isnt the best and I was hoping to hear from the GP and CMHT regarding voices, my mental health has had a hard knock from this, is there anything I can do? The British medical council says only a GP can remove you as a last report, not a manager.  I do feel this is maybe discrimination ?? any advice?

BTW re my mental health am trying to keep a lid on things, but this had made me very angry. I was hoping to hear back from the CMHT too as the voices have started again.. I called the out of hours service last night and they were going to call the CMHT today and as per usual theres been no communication.

Parents

  • I was removed from the local GP surgery because I was described as being unacceptably challenging. To give an example, I phoned up the surgery and asked to make an appointment with the doctor. The receptionist said I can't do that.  In my blunt autistic way I asked if she was stupid. To me it is very simple, the job of the receptionist is extremely easy. When someone asked to see the doctor, you look on the diary and identify the next available appointment. Yet my blunt response was deemed to be justification to exclude me from the service.

    Quite frankly that is discrimination as a consequence of someone being autistic. 

  • in reply to Professor Precise-a-bug

    I’m sorry to hear that your communication support needs have been so badly misunderstood by your GP surgery.

    I’m even more sorry that, upon sharing this example with all of us here in the NAS forum (of all places), you’ve been met with what might feel like another judgemental, ableist, and/or critical response (not dissimilar, in nature, to how your GP surgery has perhaps treated you), including:

    Iain said:
    Using your autism as an excuse here is giving us other autists a bad reputation I'm afraid.

    Unfortunately, levels of understanding of autism can vary a lot, even here among forum members. Over time, I’ve seen that some seem to have little appreciation of how much more difficult autism can make life for those whose support needs are higher than what they themselves experience or are familiar with.

    What you described seems, to me, to be a clear example of how some of our core autistic traits (eg having an abnormal social approach and/or rigid thinking patterns) can be very problematic for us in daily life - especially when the people we’re talking to don’t know enough about the nature and levels our needs. I can’t begin to imagine how upset you must feel about being excluded from the practice.

    You might find the advice here helpful:

    https://www.england.nhs.uk/contact-us/feedback-and-complaints/complaint/

    https://www.nhs.uk/nhs-services/hospitals/what-is-pals-patient-advice-and-liaison-service/

Reply
  • in reply to Professor Precise-a-bug

    I’m sorry to hear that your communication support needs have been so badly misunderstood by your GP surgery.

    I’m even more sorry that, upon sharing this example with all of us here in the NAS forum (of all places), you’ve been met with what might feel like another judgemental, ableist, and/or critical response (not dissimilar, in nature, to how your GP surgery has perhaps treated you), including:

    Iain said:
    Using your autism as an excuse here is giving us other autists a bad reputation I'm afraid.

    Unfortunately, levels of understanding of autism can vary a lot, even here among forum members. Over time, I’ve seen that some seem to have little appreciation of how much more difficult autism can make life for those whose support needs are higher than what they themselves experience or are familiar with.

    What you described seems, to me, to be a clear example of how some of our core autistic traits (eg having an abnormal social approach and/or rigid thinking patterns) can be very problematic for us in daily life - especially when the people we’re talking to don’t know enough about the nature and levels our needs. I can’t begin to imagine how upset you must feel about being excluded from the practice.

    You might find the advice here helpful:

    https://www.england.nhs.uk/contact-us/feedback-and-complaints/complaint/

    https://www.nhs.uk/nhs-services/hospitals/what-is-pals-patient-advice-and-liaison-service/

Children