Right to choose

I had a frustrating conversation yesterday with my local NHS mental health clinic who did my initial ASD referral.

I got my assessment result through just before Christmas and it said that I was indeed autistic. I ended up going through the right to choose option as I'd been on the NHS waiting list for about 3 years with no apparent end in sight. I was calling to ask the clinic about any support or guidance that they offered to autistic people and what they said surprised me, apparently they don't recognise most autism diagnosis from most non-nhs providers. 

The person I spoke to seemed to imply that if I wanted a proper assessment and diagnosis I'd have to go back into the NHS waiting list (which is now 8 years ISH).

If you are assessed by a NHS approved provider. who uses the recognised diagnosis criteria you would think you'd end up with a valid excepted diagnosis. If this is actually the case, what is the actual point of having an assessment under right to choose.

Sorry, rant over.

Parents Reply Children
  • I did wonder if this might be the nature of the misunderstanding.

    I've posted about this issue before:

    "If you go for a private ADHD diagnosis, then keep in mind that you could end up needing to fund the cost of any ongoing medication privately.

    As explained here:

    “…for adults with ADHD is that any diagnosis from a private clinic for which a GP refuses to sign a shared care agreement will likely result in the requirement for medications to be issued privately, rather than by the NHS. However, shared care agreements with private healthcare providers when this service is being provided for the patient on behalf of the NHS (such as through the Right to Choose scheme) are common.”

    ADHD Adult UK - ADHD and your GP

    This also explains more, including recommending discussing shared care in advance with your GP:

    ADHD Aware - How to get a private assessment for ADHD"