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Right to choose

Hergé

I had a frustrating conversation yesterday with my local NHS mental health clinic who did my initial ASD referral.

I got my assessment result through just before Christmas and it said that I was indeed autistic. I ended up going through the right to choose option as I'd been on the NHS waiting list for about 3 years with no apparent end in sight. I was calling to ask the clinic about any support or guidance that they offered to autistic people and what they said surprised me, apparently they don't recognise most autism diagnosis from most non-nhs providers. 

The person I spoke to seemed to imply that if I wanted a proper assessment and diagnosis I'd have to go back into the NHS waiting list (which is now 8 years ISH).

If you are assessed by a NHS approved provider. who uses the recognised diagnosis criteria you would think you'd end up with a valid excepted diagnosis. If this is actually the case, what is the actual point of having an assessment under right to choose.

Sorry, rant over.

Parents
  • Hergé said:
    apparently they don't recognise most autism diagnosis from most non-nhs providers. 

    This surprised me but on looking into it a bit deeper it seems to be a thing:

    https://adhdandautismclinic.co.uk/will-the-nhs-accept-private-autism-diagnosis/

    Considering the number of people posting on here who have complained about the NHS assessment seeming amateur or sincere then it is odd they would dismiss 3rd parties so readily.

    I think is right to suggest you speak to a decision maker at the clinic and ask them to explain in detail why they are refusing to accept it, if this is even a thing. Making them have to justify it often highlights a poorly though out decision and may get them to look at it again for you.

    If they are referring you to a company and then not accepting the result then this is wasting NHS money and your time, not to mention the distress it is casusing.

    If they stick to their line then ask for it all in writing and tell them you will get your solicitor in touch with them to discuss a malpractice case. This last threat should get them to take a long hard look and decide if they can afford to be so stubbornly stupind over this.

    That is what I would do in your shoes anyway - I can't offer medical of legal advice obviously otherwise I would swell up like a balloon and pop. Allegedly.

Reply
  • Hergé said:
    apparently they don't recognise most autism diagnosis from most non-nhs providers. 

    This surprised me but on looking into it a bit deeper it seems to be a thing:

    https://adhdandautismclinic.co.uk/will-the-nhs-accept-private-autism-diagnosis/

    Considering the number of people posting on here who have complained about the NHS assessment seeming amateur or sincere then it is odd they would dismiss 3rd parties so readily.

    I think is right to suggest you speak to a decision maker at the clinic and ask them to explain in detail why they are refusing to accept it, if this is even a thing. Making them have to justify it often highlights a poorly though out decision and may get them to look at it again for you.

    If they are referring you to a company and then not accepting the result then this is wasting NHS money and your time, not to mention the distress it is casusing.

    If they stick to their line then ask for it all in writing and tell them you will get your solicitor in touch with them to discuss a malpractice case. This last threat should get them to take a long hard look and decide if they can afford to be so stubbornly stupind over this.

    That is what I would do in your shoes anyway - I can't offer medical of legal advice obviously otherwise I would swell up like a balloon and pop. Allegedly.

Children
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