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Gatekeeping

Hergé

When I received my assessment results just before Christmas it stated that I should also be assessed for ADHD, as I demonstrated a significant overlap.

Today I spoke to my GP about being referred and got a surprising amount of resistance. Baring in mind this he has my full assessment results. He seemed to want me to justify why I felt I should be referred and to describe in detail the difficulties I experience.

Eventually he forwarded me an email with a questionnaire that I'd already completed for my ASD assessment. He also wants "a few paragraphs" to explain my thoughts on my answers.

I can appreciate that they don't want to waste resources but this seemed a bit much.

Parents

  • Judging by an extraordinary (stunningly, shockingly, awful) bulletin seen on a GP Practice's online Patient news page in an area of England last Summer ...I think the magic phrase (clue) which might the source of your GP apparent reluctance about adult ADHD referral - might revolve around something known as a "Shared Care Agreement" or SCA.  This isn't the inly sensitivity, as there can be comments about Secondary Care, Private Diagnosis, Right To Choose and Individual Funding Requests / medication etc.  (If your eyes have, understandably, glazed over already with terminology overload: please skip down to the last link I have included).

    The below research paper "Support for primary care prescribing for adult ADHD in England: national survey" (source: British Journal Of General Practice, Spring 2024) highlights the apparent "lottery" on the subject - varying from one GP Practice to the next one:

    https://bjgp.org/content/74/748/e777

    There is a revised NICE guideline "Attention deficit hyperactivity disorder: diagnosis and management NICE guideline [NG87] Published: 14 March 2018 Last updated: 13 September 2019

    which might prove useful to read:

    https://www.nice.org.uk/guidance/NG87

    ...in particular, within the above, the section "Information For The Public" (for which there is a short PDF you can download):

    https://www.nice.org.uk/guidance/ng87/resources/attention-deficit-hyperactivity-disorder-diagnosis-and-management-pdf-6132430815685 

    (At the end of the PDF there is a list of links to ADHD organisations for further help and support).

    The ADHD UK website includes a dedicated section about Adult ADHD Diagnosis Pathways (including what to do if you experience a reluctant GP):

    https://adhduk.co.uk/diagnosis-pathways/

    Best wishes with your diagnosis journey.

Reply

  • Judging by an extraordinary (stunningly, shockingly, awful) bulletin seen on a GP Practice's online Patient news page in an area of England last Summer ...I think the magic phrase (clue) which might the source of your GP apparent reluctance about adult ADHD referral - might revolve around something known as a "Shared Care Agreement" or SCA.  This isn't the inly sensitivity, as there can be comments about Secondary Care, Private Diagnosis, Right To Choose and Individual Funding Requests / medication etc.  (If your eyes have, understandably, glazed over already with terminology overload: please skip down to the last link I have included).

    The below research paper "Support for primary care prescribing for adult ADHD in England: national survey" (source: British Journal Of General Practice, Spring 2024) highlights the apparent "lottery" on the subject - varying from one GP Practice to the next one:

    https://bjgp.org/content/74/748/e777

    There is a revised NICE guideline "Attention deficit hyperactivity disorder: diagnosis and management NICE guideline [NG87] Published: 14 March 2018 Last updated: 13 September 2019

    which might prove useful to read:

    https://www.nice.org.uk/guidance/NG87

    ...in particular, within the above, the section "Information For The Public" (for which there is a short PDF you can download):

    https://www.nice.org.uk/guidance/ng87/resources/attention-deficit-hyperactivity-disorder-diagnosis-and-management-pdf-6132430815685 

    (At the end of the PDF there is a list of links to ADHD organisations for further help and support).

    The ADHD UK website includes a dedicated section about Adult ADHD Diagnosis Pathways (including what to do if you experience a reluctant GP):

    https://adhduk.co.uk/diagnosis-pathways/

    Best wishes with your diagnosis journey.

Children
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