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Sensory difficulties

Deleted User

I found this website last week.

stimpunks.org/.../

I suppose if you have a sensitive disposition don't click on the link. / trigger warning. The picture at the top of the page isn't nice but very accurately depicts how I felt yesterday when amongst others and how I've felt today. After my comment on another thread about it - today, I'm honestly not sure if it was worth it. I've been in a heightened state all day and it hasn't been nice. It's not going to miraculously disappear. 

The article is also useful about sensory difficulties / trauma which can build up. 

Parents

  • Hey. I hope you're feeling better today? Thank for posting this and sharing a link. It was an interesting read and I resonated a lot with what I read like this part:

    "My earliest, most powerful memories are sensory. Of things feeling chaotic. Of being terrified of loud noises. Of being terrified of a lot of foods."

    This was me when I was little. At first I thought it might be a me thing but it's nice to know I'm not the only one and admittedly I thought I was just a fussy thing, had no idea this was sensory related.

    Such an interesting page to read. Thanks for this.

    Feel better soon :o) 

  • in reply to R
    R said:
    "My earliest, most powerful memories are sensory. Of things feeling chaotic. Of being terrified of loud noises. Of being terrified of a lot of foods."

    Yes I can completely understand this, as the only way we access and process the world is through our sensory organs. However it may not seem obvious at first.

  • in reply to Ausomely Autistic

    I like that with autism that I'm still discovering new things about it and myself despite I was diagnosed 6 yrs ago. I'm really grateful for this community.

  • in reply to R
    R said:
    you would be great at leading your own group and I hope one day you get such an opportunity yourself :o) 

    Thanks for the compliment! It’s a future ambition.

    R said:
    I hope you get another chance next year! 

    Ditto!

  • in reply to Ausomely Autistic
    Ausomely Autistic said:
    I would love to run my own autistic social group too particularly as many groups for autistic people are not actually autistic led.

    I think seeing your enthusiasm and your proudness of being autistic which I completely share and understand, you would be great at leading your own group and I hope one day you get such an opportunity yourself :o) 

    It's hard work and sometimes quite stressful but I find it a rewarding experience and I love it.

    Ausomely Autistic said:

    Recently, I found the online autistic group called Aupeer:

    https://www.aupeer.org.uk/

    I did intend to join but unfortunately I slept through the Zoom meeting! I might try again in the new year though.

    I hope you get another chance next year! 

  • in reply to R
    R said:
    I go to a local group I started after feeling inspired by attending NAS groups. I wanted to create an autistic friendly and safe space for people to go for support and a chat every Friday. So far it's of to a good start :o) 

    So glad you enjoy it! That’s such an amazing achievement, I bet other members are grateful for the safe space you created too!

    I would love to run my own autistic social group too particularly as many groups for autistic people are not actually autistic led.

    Recently, I found the online autistic group called Aupeer:

    https://www.aupeer.org.uk/

    I did intend to join but unfortunately I slept through the Zoom meeting! I might try again in the new year though.

  • in reply to Ausomely Autistic

    I go to a local group I started after feeling inspired by attending NAS groups. I wanted to create an autistic friendly and safe space for people to go for support and a chat every Friday. So far it's of to a good start :o) 

  • in reply to R
    R said:
    Thank you for the links. I'll definitely be taking a look and also viewing the live streams, it will likely be very rewarding and may offer further support, tips and gain my knowledge of autism and how to better cope with it when it throws curve balls my way.

    You are so welcome! I hope you enjoy the livestreams.

    R said:
    It's also something I can share with my group tomorrow as I'm sure lots of other people would benefit from this as well, as you have.

    Great idea! What group do you go to? I am part of virtual autistic communities but I would love to be part of an in person group.

    R said:
    It's a long journey but rewarding and enlightening.

    Absolutely! Couldn’t agree more, knowledge is power!

  • in reply to Ausomely Autistic

    Thank you for the links. I'll definitely be taking a look and also viewing the live streams, it will likely be very rewarding and may offer further support, tips and gain my knowledge of autism and how to better cope with it when it throws curve balls my way.

    It's also something I can share with my group tomorrow as I'm sure lots of other people would benefit from this as well, as you have.

    Thank you, this is very much appreciated :o) 

    I'm always discovering new things about autism and myself, especially now I'm active here again. It's a long journey but rewarding and enlightening.

  • in reply to R
    R said:
    I like that with autism that I'm still discovering new things about it and myself despite I was diagnosed 6 yrs ago. I'm really grateful for this community.

    That’s great R! The autistic discovery journey is lifelong! I love this community too, I feel a great sense of belonging.

     I know you are quite far into your autistic discovery journey but you might find the YouTube channel and website Aucademy useful. It’s an absolutely amazing autistic led education platform about autistic experiences.

    I have learnt so much from Aucademy so I usually recommend it to other autistics:

    https://aucademy.co.uk/


    https://youtube.com/@aucademy6195?si=7ScbDh1e8Mj30nl1

    Aucademy host monthly livestreams which I always look forward to!

    I hope you discover more about your autistic identity through Aucademy too.

Reply
  • in reply to R
    R said:
    I like that with autism that I'm still discovering new things about it and myself despite I was diagnosed 6 yrs ago. I'm really grateful for this community.

    That’s great R! The autistic discovery journey is lifelong! I love this community too, I feel a great sense of belonging.

     I know you are quite far into your autistic discovery journey but you might find the YouTube channel and website Aucademy useful. It’s an absolutely amazing autistic led education platform about autistic experiences.

    I have learnt so much from Aucademy so I usually recommend it to other autistics:

    https://aucademy.co.uk/


    https://youtube.com/@aucademy6195?si=7ScbDh1e8Mj30nl1

    Aucademy host monthly livestreams which I always look forward to!

    I hope you discover more about your autistic identity through Aucademy too.

Children
  • in reply to R
    R said:
    you would be great at leading your own group and I hope one day you get such an opportunity yourself :o) 

    Thanks for the compliment! It’s a future ambition.

    R said:
    I hope you get another chance next year! 

    Ditto!

  • in reply to Ausomely Autistic
    Ausomely Autistic said:
    I would love to run my own autistic social group too particularly as many groups for autistic people are not actually autistic led.

    I think seeing your enthusiasm and your proudness of being autistic which I completely share and understand, you would be great at leading your own group and I hope one day you get such an opportunity yourself :o) 

    It's hard work and sometimes quite stressful but I find it a rewarding experience and I love it.

    Ausomely Autistic said:

    Recently, I found the online autistic group called Aupeer:

    https://www.aupeer.org.uk/

    I did intend to join but unfortunately I slept through the Zoom meeting! I might try again in the new year though.

    I hope you get another chance next year! 

  • in reply to R
    R said:
    I go to a local group I started after feeling inspired by attending NAS groups. I wanted to create an autistic friendly and safe space for people to go for support and a chat every Friday. So far it's of to a good start :o) 

    So glad you enjoy it! That’s such an amazing achievement, I bet other members are grateful for the safe space you created too!

    I would love to run my own autistic social group too particularly as many groups for autistic people are not actually autistic led.

    Recently, I found the online autistic group called Aupeer:

    https://www.aupeer.org.uk/

    I did intend to join but unfortunately I slept through the Zoom meeting! I might try again in the new year though.

  • in reply to Ausomely Autistic

    I go to a local group I started after feeling inspired by attending NAS groups. I wanted to create an autistic friendly and safe space for people to go for support and a chat every Friday. So far it's of to a good start :o) 

  • in reply to R
    R said:
    Thank you for the links. I'll definitely be taking a look and also viewing the live streams, it will likely be very rewarding and may offer further support, tips and gain my knowledge of autism and how to better cope with it when it throws curve balls my way.

    You are so welcome! I hope you enjoy the livestreams.

    R said:
    It's also something I can share with my group tomorrow as I'm sure lots of other people would benefit from this as well, as you have.

    Great idea! What group do you go to? I am part of virtual autistic communities but I would love to be part of an in person group.

    R said:
    It's a long journey but rewarding and enlightening.

    Absolutely! Couldn’t agree more, knowledge is power!

  • in reply to Ausomely Autistic

    Thank you for the links. I'll definitely be taking a look and also viewing the live streams, it will likely be very rewarding and may offer further support, tips and gain my knowledge of autism and how to better cope with it when it throws curve balls my way.

    It's also something I can share with my group tomorrow as I'm sure lots of other people would benefit from this as well, as you have.

    Thank you, this is very much appreciated :o) 

    I'm always discovering new things about autism and myself, especially now I'm active here again. It's a long journey but rewarding and enlightening.