No support

It really sucks having autism and then you get dropped mental health right on top of it. I like some aspects of ASD, good memory, noticing the smallest details that most miss, stimming... but then there’s the anxiety, the depression, mental health... apparently all three are more common in people with autism. I find it both intriguing and extremely annoying. Mental health is a weird one, your own brain can push you so hard and it’s you doing it but at the same time you’re fighting back. I had a moment the other night where my brain kicked me hard and I ended up wearing very little, windows open and my fan on until I was so cold I felt sick and couldn’t feel my body. I phoned up my mental health team when I was sufficiently recovered and the woman on the other end sounded bored and made no attempt to hide that she couldn’t care less. The call last four minutes twenty one seconds in which she ended it suggesting I watch a film. No goodbye or take care, just hung up after that. Nice to know the professionals care isn’t it?

I've promised myself that if I recover and get to a good place again I will make a huge effort to do more for the autistic and mental health communities. I was doing this a few years ago but since I've not done so well but I want to get back to that again when I'm ready.

Sorry for pouring my heart and worries here. I hope everyone else is doing well and has had a good summer, not that it’s been particularly summery I know.

Parents
  • About 18 months ago I was at the lowest ebb of my life. Very, very poor mental health (specifically anxiety but depression was also mixed up in there) due to a very traumatic experience I had two summers ago. 

    This was all before it was even questioned whether I was neurodivergent. 

    I can really empathise with the fact the woman didn't seem to care about you. I had many similar experiences. I was actually told by someone high up in the pastoral care at my university that she was happy I had to wait for support so that I had "time to wallow in my trauma". The Samaritans blocked my number because I called them for more than 20 hrs in a 30 day stint, telling me that I "needed to reach out to more professional services such as the NHS/ my GP" when I had and was on a 12-15 month wait list to be seen by anyone.

    In the end, after 11 months on that list they called me telling me that they were dropping me from their services :/

    It's a very lonely feeling, but there will be something out there in the end that will make it all worth it. For me, parkrun saved my life and gave me both something to work towards and a community of people that I love. Then, I met my boyfriend and we've been together for 7 months now. 

    If you had told me a 18 months ago that this is what my life looks like now, I would've said that that was impossible. Of course, my life isn't perfect. But there are times when I truly love it and am glad that I am alive.

  • But there are times when I truly love it and am glad that I am alive.

    This is truly wonderful to read and I'm glad that you are finding times like this in your life now. Bless you.

    I'm still waiting to find that in my life. I haven't yet but knowing it's coming offers me a lot of hope and is one of the reasons why I haven't given up.

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