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I don't have an eating disorder cause I'm autistic

Lilac

Years ago I got referred to an eating disorder team when I was nearly 18 (I'm 24 now) they knew I had autism and how it effected things but still diagnosed me with ednos. I didn't really gain whilst I saw them for 6 months and then they had a review meeting and told me I didn't have an eating disorder and they got it wrong, it was just my autism cause I don't like changes. So then they got rid of me and the general mental health people wouldn't help cause they don't deal with eating problems, so I've been trying to deal with it on my own ever since. Has anyone else had an experience like this? 

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  • in reply to Lilac

    Sorry if I wasn’t very clear, I meant that there are people who may be able to help you, like the professional  in the documentary but it may take some searching to find them. She recognised the autistic relationship with food displayed by some of the patients and tailored the treatment to them rather than treating them like more typical ED patients

  • in reply to Lilac

    Hi Lilac. I think that GT was maybe thinking, as I was, that it's a complicated continuum that even the professionals haven't fully mapped. So whoever told you that your eating disorder is 'just ' autism has been reductive about it to your detriment. Which is a shame. I hope you can get to a place of feeling more at ease with what sound like healthy steps you've been trying to take, but it sounds like you've not been treated well there. The lady in that documentary would be appalled I suspect, at how you were dismissed in that way.