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Getting my prescriptions!!

NAS83776

Hi everyone,

I have been having trouble getting my prescriptions. None of my prescriptions are for my autism (unless you count the anti-depressants, being undiagnosed for so long did partially cause my depression.)

I get very stressed about getting my prescriptions, I am constantly worrying that I am going to run out, that I am not going to be able to get my prescription in time etc. A lot of this is due to being unable to order my prescriptions again too close to when I just got them and having previous experience with delays due to my GP, the pharmacy and due to medication shortages.

I understand why I can't order the same medication within a certain time frame, but this means that I get very stressed. I see I only have a couple weeks left (I get it a month at a time) and panic that it is going to take longer for me to get some more meaning that I will have some days without it.

The last time I had a medication review. I tried to talk to the doctor about this, and tried to explain that I was autistic and this is how I am feeling, and tried to ask for help. But was told that it was my fault and I needed to be more organised. This resulted in me being out of it for days after and having a panic attack and crying for a hour after. Also, this was all on the phone because at my last GP I attempted to ask for an in person appointment due to my autism and was told I could not and was hung up on. So, now I am too scared to try to get an in person appointment.

So, in conclusion that is why I hate the NHS and how they respond to autism.

PLEASE HELP!!

P.S I posted this in the 'autistic adults' forum but then found this one and thought it might be more suitable

  • That's unfortunate.  I have come to not expect any help from the NHS unless I am bleeding out from every orifice. That's been even more the case since the changes Covid-19 brought in   I had to go private to get a diagnosis for my ASD because the NHS process was sheer hell. That's another story.

    I also need meds regularly. I think that although you weren't told in a nice enough way, it was right that you could find a system to help you feel less anxious about running out of stuff. Perhaps a calendar especially for the purpose with reminders? Or there are services that can re-order your drugs and give them in daily presentation with dates on. You might even enjoy it as a routine? Basically,  if you want to be very concerned about it, that's OK, so work on it directly.

    I am an organisation disaster area  myself, and I have run out of anti depressants a couple of times   I went to an NHS chemist (any in the high street) and they accessed my records and gave my a small supply till I could contact my GP. 

    Hope this helps.

  • in reply to Martin

    I second this as well, Boots have a similar service I’ve just bought a months supply of a medication I’m about to run out of because there’s a national shortage of the prescription brand. Well worth the £10 to know I definitely have some even though it’s usually a free prescription 

  • Have you spoken to the pharmacy? Mine can take care of the whole process for you if it’s things you get on long term repeat. You have to fill out some forms and they also have an app you can track everything through

  • I have bought 'spare' asthma inhalers online from Superdrug - https://onlinedoctor.superdrug.com - if you can afford it, this could be an option.