Mental Health Services

Hi! Just curious to see what mental health services have been made available for autistic people to use? Do you think they are suitable/ beneficial? If not, what do you think can be done to improve these services/make them more accessible for autistic people? I am currently writing a proposal to improve mental health services offered to autistic people and I would really love some insight from people that have used these services so that we can focus on areas of improvement! Slight smile

Parents
  • Phew! How many hours do you have?

    Feel free to message me if you are looking for views on particular areas. I'm glad some one is working on improvements in MH because God knows they need it.

    I went to them with the medical and body phobias which were getting out of control right at a time when I needed major dental interventions. The procedures sent me into a tail spin of endless melt downs and dramatic stims that had me suicidal in the end.

    To me it was obvious that MH were never really listening. Nothing they said seemed to relate to what I was describing and nothing was helpful, and in fact they were making matters actively worse - bigtime worse. I did not know I was Autistic at the time.

    In the end, no matter how dangerous a place I was in we stopped talking to them. All they seemed to do was treat me like a very naughty school girl, have meetings and ignore my deep distress.

    In the depths of crisis, I kept researching myself until I found an explanation for the Room 101 abject terror and the repeated melt downs and shut downs in or consequent to the dental intervention. Finally thanks to this site, I realised I could be Autistic and am now diagnosed.

    It later transpired that a shrink I saw for 2 mins without ever discussing my mental health had slapped and EUPD diagnosis on file and no one told me. I had to spend a fortune disproving that to get it removed.

    I have now seen my notes. My feeling was right from the get go, they were barking up the wrong tree, never believed a word I said to them and blamed me for not being "helped" when they were in fact treating the wrong thing.

    In hind sight my Autism was stamped all over this from the get go and yet they did not see it. That much is because they are not trained and I can forgive that part readily. But that they stuffed me in the wrong box without telling me, did not believe my experience and actively blamed me and put me in the bin, has traumatised me and I will never, ever trust them again!

    The first improvement they need is to recognise Autism when it is in front of them. The second not to make diagnoses of any kind for anyone without assessing properly and informing the patient. The third is when the patient is clearly describing something other than their preconceived notions dictate, they need to believe them. And then we can talk about adaptations to therapy and reasonable adjustments etc.

    At the end of the day, I now know that there is very little MH could do anyway. Other than the anxiety, there's nothing wrong with me mentally and there is certainly nothing wrong with my personality. I now understand that the problem is in my sensory system not my id. No amount of CBT or other psychology can address that, adapted or not. So, even the best MH dept would be no use at all in my case. But they could at least "do no harm" and learn to recognise and understand Autism. They did quite a lot of harm and I'll have no more to do with them.

Reply
  • Phew! How many hours do you have?

    Feel free to message me if you are looking for views on particular areas. I'm glad some one is working on improvements in MH because God knows they need it.

    I went to them with the medical and body phobias which were getting out of control right at a time when I needed major dental interventions. The procedures sent me into a tail spin of endless melt downs and dramatic stims that had me suicidal in the end.

    To me it was obvious that MH were never really listening. Nothing they said seemed to relate to what I was describing and nothing was helpful, and in fact they were making matters actively worse - bigtime worse. I did not know I was Autistic at the time.

    In the end, no matter how dangerous a place I was in we stopped talking to them. All they seemed to do was treat me like a very naughty school girl, have meetings and ignore my deep distress.

    In the depths of crisis, I kept researching myself until I found an explanation for the Room 101 abject terror and the repeated melt downs and shut downs in or consequent to the dental intervention. Finally thanks to this site, I realised I could be Autistic and am now diagnosed.

    It later transpired that a shrink I saw for 2 mins without ever discussing my mental health had slapped and EUPD diagnosis on file and no one told me. I had to spend a fortune disproving that to get it removed.

    I have now seen my notes. My feeling was right from the get go, they were barking up the wrong tree, never believed a word I said to them and blamed me for not being "helped" when they were in fact treating the wrong thing.

    In hind sight my Autism was stamped all over this from the get go and yet they did not see it. That much is because they are not trained and I can forgive that part readily. But that they stuffed me in the wrong box without telling me, did not believe my experience and actively blamed me and put me in the bin, has traumatised me and I will never, ever trust them again!

    The first improvement they need is to recognise Autism when it is in front of them. The second not to make diagnoses of any kind for anyone without assessing properly and informing the patient. The third is when the patient is clearly describing something other than their preconceived notions dictate, they need to believe them. And then we can talk about adaptations to therapy and reasonable adjustments etc.

    At the end of the day, I now know that there is very little MH could do anyway. Other than the anxiety, there's nothing wrong with me mentally and there is certainly nothing wrong with my personality. I now understand that the problem is in my sensory system not my id. No amount of CBT or other psychology can address that, adapted or not. So, even the best MH dept would be no use at all in my case. But they could at least "do no harm" and learn to recognise and understand Autism. They did quite a lot of harm and I'll have no more to do with them.

Children
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