Support for people with ASD

Hello, 

Just need to ask someone for their personal experiences and support what they think appropriate support is for people

with autism spectrum disorders in a supported accommodation housing setting 

1: what support should someone with autism recieve?

2: What support should they not be receiving 

3: How should the staff behave around me and communicate to me ideas/thoughts/beliefs etc 

4: What support is not appropriate?

Please could someone just give me some information 

  • First of all, a housing situation should minimise open artificial light, be mindful of electronics buzzing, high pitched frequencies and seek to kill on-going drones of noise. Artificial light should be properly diffused and one reading energy efficient halogen allowed. Walls should be bare and Functional Aesthetic kept in mind. No noisy curtains. Bedding should be natural cotton, not mixed fibres. There should be access to fresh air 24/7. These should be basic. Everyone should be mindful that gut-health can cause extreme pain even death and we are incredibly vulnerable to chemically made products and modified food sources - essentially anything non-human friendly.

    As for communication and behaviour, we can all be reasonable and do our part to work toward helpful 'virtues' or grounding principles. Respect, Openness, a desire to understand, a setting aside of the ego to try and see the Other, affording dignity. Never assuming, always asking helpful questions and double checking I understand by repeating back a thing or asking, 'are you implying / asking this'.

    Just a few ideas.

  • I think the problem in a lot of these places is that they can't recruit and keep the staff - hence the ever changing personnel.  I'd push to see what they can do to give you more consistency.  I'd also make a list of the things you think are inappropriate and bring those up, possibly in writing before you start.  It maybe they haven't had enough training either.

  • Hello, 

    Thanks for the reply. 

    Sometimes the support is not good for someone with autism, and they have at times behaved very inappropriately towards me in the past. 

    Staff (I have already mentioned to them before about this) that the staff come and go some times they are always shifting and changing coming and going not good for someone with autism , I personally don't feel comfortable around new people I get nervous and anxious at times but I will do my best to tolerate it and accept it and move on. 

    I have a meeting that should be taking pace with 3 other people so if nothing improves or things deteriorate I have a social worker to review my current placement and move me somewhere else where it is better supported. The power and decision is in my hands

    thanx

  • Boy! That's got to be so individual. We all have support needs but they are all different.

    I guess the key is defining what your strengths and weaknesses are, making sure they help you with what you can't do, whilst backing off and leaving you alone to get on with what you can do.

    Do you feel the current support is inappropriate?