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Finally, a diagnosis

NAS78864

After a few years of slow decline which speeded up during COVID my mum has finally been diagnosed with dementia and Alzheimer’s. She scored 68/100 in her test, ten months ago it was 82/100. I’m trying to process it in my mind and work out what happens next for her and for me without rushing too much. Mum has seemingly declined since the diagnosis which was only a few days ago, it’s almost as if she’s accepted it now and stopped trying to pretend she’s okay - is that something which happens?

She has just started having carers twice a week (is self funding) and I visit weekly (work full time and live a 40 minute drive away). I am an only child, as is she, and my dad/her husband died nearly ten years ago.

I know I should start to fill in the Attendance Allowance forms and that she can claim Council Tax Exemption. Is there anything else I should do as a matter or urgency please?

Parents

  • As a care aid I can tell you that if she is in need of constant care she will be in what is called complex care and quite likely in the dementia unit which is a locked wing that every care home has for people who are too much of a risk for getting lost. Assisted living is for people who still have the ability to direct their own care. Assisted living can be considered [Removed by Moderator] an intermediate stop for some people with  dementia.

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  • As a care aid I can tell you that if she is in need of constant care she will be in what is called complex care and quite likely in the dementia unit which is a locked wing that every care home has for people who are too much of a risk for getting lost. Assisted living is for people who still have the ability to direct their own care. Assisted living can be considered [Removed by Moderator] an intermediate stop for some people with  dementia.

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