Anyone else feel like they're not autistic "enough" sometimes?

A lot of things in my life feel out of my control, and a lot of that has to do with the fact that I always seem to be faced with either extreme opposites or at least conflicting understandings, instructions, and perceptions of the world. I'm always either "too much" of something or "too little" of something - often I'll get conflicting feedback from different sources about the same thing, which leaves me more confused. Or I've been told to do something one way, then when I try it I'm told I did it wrong and to go back to the old way, only for the process to repeat over and over. It's frustrating and makes me feel like such a failure.

The main thing that gets to me is outside perception of my condition. I don't fit into the box of "normal", clearly, as I was diagnosed with Aspergers, and yet according to the world I'm at the same time not autistic "enough" to need any kind of support. I'm great at masking, so I must not need any help. I just need to try harder to not let the mask slip so much, or I'm getting lazy and making excuses. So in theory I should be able to pass off as neurotypical, right? Also not the case. Then I'm constantly told that there is clearly something wrong with me.

And don't even get me started on whether I'm considered a child or an adult. Regardless of my actual age (mid-20s), my perceived ability to handle pretty much anything seems to change by the minute. Too young and naive to be left to my own devices, but old enough that I shouldn't need to be "told" to do anything, I should "just know"? Humans are strange enough that I start to wonder if I'm one of them.

Parents
  • I think lots of people feel like this. Both my children are autistic and my youngest is much more ‘noticeably’ autistic. My eldest did great academically, went to an excellent Uni and therefore it’s assumed that they’re going to be able to cope with everything and sail through life. But they have many many struggles that are really challenging - it’s just that those struggles are usually more hidden from view. 

    I’m autistic too but didn’t even know what autism really was when I was young and feeling so different to everyone else - and feeling completely awful and useless about that. 

    My youngest always worries that people treat him as younger than he is - and see him as childish. He has Selective Mutism and people often can be a bit patronising towards him. It drives him crazy when people do this - understandably - but he can’t say anything. It’s so infuriating for him. 

  • It's honestly so saddening. I really, truly have held onto hope that our children will have at least something of an easier time than we did. I hope all goes better for them.

    Oh, of course. I sometimes go non-verbal at times of high stress or exhaustion, or sometimes the opposite, when I 'lose the filter' as it were and end up vocalising nonsense before I can effectively translate it into normal person speak. You can imagine the kind of responses these get. These are still ways of communication, they're just a little more unique and personal. I'm lucky to have a partner who has always understood me even during these odd moments - we truly speak the same language. No one understands me on the deeper level she does. Be this person for your son, his advocate without speaking over him. But I'm sure I don't have to tell you that.

    All this to say: be brave. The right people will find us, given time and the opportunity.

  • You don’t ‘have to tell me that’ it’s true - but I totally agree and it’s lovely  to hear your supportive words for my son. Thank you - I really appreciate that. I’m glad you have that with your partner. I have that with my husband too - and my eldest does with their partner. I think that when autistic do find the right person we do form really strong, loyal relationships. My youngest really wants to find a girlfriend but it’s so difficult for him as he can’t speak to people in college (and is having time out of college now anyway due to his mental health problems). I hope he finds that with someone though - because he’s the most wonderful and loving person and deserves to find love. 

Reply
  • You don’t ‘have to tell me that’ it’s true - but I totally agree and it’s lovely  to hear your supportive words for my son. Thank you - I really appreciate that. I’m glad you have that with your partner. I have that with my husband too - and my eldest does with their partner. I think that when autistic do find the right person we do form really strong, loyal relationships. My youngest really wants to find a girlfriend but it’s so difficult for him as he can’t speak to people in college (and is having time out of college now anyway due to his mental health problems). I hope he finds that with someone though - because he’s the most wonderful and loving person and deserves to find love. 

Children