Autism Awareness Course

Hi to you all 

I have been referred for an Autism assessment.

Due to mental health problems I have been attending Zoom meetings with a local NHS project.  They are in the process of creating a six week Autism awareness course. They have asked people including those diagnosed or on a waiting list or parents to help contribute or co-produce the course.  I have offered to help. I have thought and looked stuff up and considering stuff: the best way to explain Autism, the good aspects of it, the struggles people have to face. I thought to myself well why not ask you guys to get a broader picture. So hey you guys what would you think/feel the best things would be to include in an Autism Awareness Course. What would you yourselves like to be brought up. Also what would be best if there will be a mix of people.

It is good that they are creating this course in order to expand knowledge and that it will seek the views of people with lived experience.

Parents
  • Thanks for asking for input, it is really promising that they are asking for autistic input.

    The really important equation- Autism + Environment = Outcome. You can always change the environment in some way to suit the autistic person.

    1.Being autistic is very different from the description of autism.
    2. Autism is a form of neurodivergence, so much of the autistic experience is very internal.
    3. Autistic people are passionate people who are very sensitive, so our interests are more than just interests they are integral to our wellbeing and identity. 

    4. We communicate and feel differently, we are literal and honest communicators. Stimming is beautiful and very much part of the autistic communication style. Please communicate clearly, vague communication can cause unnecessary anxiety.

    5. Please use identity first language - autistic people vs people with autism. Autistic describes our neurology, community and culture.

    6. Everything at it’s core is related to sensory experience. Our differences in sensory experience can mean we notice details that other people do not.

    7. We feel intensely, our emotions can be overwhelming both positively and negatively. This is why stimming is important.

    8. Meltdowns and shutdowns are involuntary responses to our nervous system being overloaded by an unsuitable environment. These responses are not part of being autistic, but a natural response to a stressful environment. Please help us feel calm and safe.

    9. Many autistic people mask. Please be aware that what you see is not necessarily how we truly feel.

    10. Routine, predictability and sameness is very important for us to feel safe and in control. Uncertainty and changes can therefore cause us unbearable anxiety.

    11. We hyper focus and this means we can be very productive.

    12. Being autistic means we are different and that is really cool.

     I hope this is ok, I could add more but I would be writing for ages.

  • Hi

    thank you for the list. I am going to copy it and print it off and read it over and over. The points are so well put. They are also about seeing stuff in a positive way.

    I was thinking of including issues such as huge prevalence of mental illness, suicide rates, comorbid physical illness, unemployment etc. However then I thought it would be better to bring up positives first and add issues and struggles later as they should be included at some time.

    Maybe it’s about seeking a balance .

    Your descriptions to me are good. I wondered as well if to provide an introduction to what autism is would it be good to include a visual representation for example that created by Rebecca Burgess a freelance comic artist and Autistic advocate  on the Art-Of-Autism site. It is a bit childlike but friendly. Good for a zoom presentation?


    As well would it be good to include an easy read representation of the new Government Autism Strategy which could give hope that there is positive change coming forward; we hope. 
    Would be good to facilitate attendees to talk about their own experience as well and give information on local meet up groups etc.
  • You are welcome. How detailed will the training be because some of the topics you mention are quite complex?

    I was thinking of including issues such as huge prevalence of mental illness, suicide rates, comorbid physical illness, unemployment etc
    I wondered as well if to provide an introduction to what autism is would it be good to include a visual representation for example that created by Rebecca Burgess a freelance comic artist and Autistic advocate  on the Art-Of-Autism site. It is a bit childlike but friendly. Good for a zoom presentation?

    Yes it is really important to include this. Most non autistic people think of a linear spectrum but the diversity of autistic experience is more like a colour wheel, similar to the one Rebecca Burgess created.

    It is really important to emphasise that being autistic is a different way of being human, so everyone has their own profile of strengths and weaknesses, some of which are more common in autistic people like hyper focus. I think the spiky profile should be also be explained. 

    Also it is really important to emphasise the benefits of embracing neurodiversity both for the autistic person themselves and the people that support them.

Reply
  • You are welcome. How detailed will the training be because some of the topics you mention are quite complex?

    I was thinking of including issues such as huge prevalence of mental illness, suicide rates, comorbid physical illness, unemployment etc
    I wondered as well if to provide an introduction to what autism is would it be good to include a visual representation for example that created by Rebecca Burgess a freelance comic artist and Autistic advocate  on the Art-Of-Autism site. It is a bit childlike but friendly. Good for a zoom presentation?

    Yes it is really important to include this. Most non autistic people think of a linear spectrum but the diversity of autistic experience is more like a colour wheel, similar to the one Rebecca Burgess created.

    It is really important to emphasise that being autistic is a different way of being human, so everyone has their own profile of strengths and weaknesses, some of which are more common in autistic people like hyper focus. I think the spiky profile should be also be explained. 

    Also it is really important to emphasise the benefits of embracing neurodiversity both for the autistic person themselves and the people that support them.

Children