• Replies 3 replies
  • Subscribers 8 subscribers
  • Views 1904 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

What would you have liked from a post-diagnosis peer support group?

MoMoSmurph

Hi

I'm seeking opinions on what you would have liked to be included in a short-term post-diagnosis peer support group (if you'd had the chance to attend one). I'm an autistic researcher setting up a project to co-create the content of the group sessions with the autistic adults who are participating and while the project is going through the ethics approval process, I'd like to gather some opinions. What kind of things would you have found useful? Examples are time to have some free-flow chat, learning more about autism, learning some coping skills...? etc..

I'd be really grateful for your opinions! Slight smile

Parents

  • Biscuits, yes.  But also detailed, robust advice on how to assist with:

    - chronic burnout in an family member

    - how to improve family dynamics (again in a household where ALL members are adults)

    - therapy for trauma, including intergenerational trauma as a result of lack of identification and support

    And generally more on family support.  I'm finding that most services either support individuals or parents of children.  Hardly anything for families where the youngest age of diagnosis is already in adulthood and family members wont' necessarily engage with services themselves. 

Reply

  • Biscuits, yes.  But also detailed, robust advice on how to assist with:

    - chronic burnout in an family member

    - how to improve family dynamics (again in a household where ALL members are adults)

    - therapy for trauma, including intergenerational trauma as a result of lack of identification and support

    And generally more on family support.  I'm finding that most services either support individuals or parents of children.  Hardly anything for families where the youngest age of diagnosis is already in adulthood and family members wont' necessarily engage with services themselves. 

Children