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What would you have liked from a post-diagnosis peer support group?

MoMoSmurph

Hi

I'm seeking opinions on what you would have liked to be included in a short-term post-diagnosis peer support group (if you'd had the chance to attend one). I'm an autistic researcher setting up a project to co-create the content of the group sessions with the autistic adults who are participating and while the project is going through the ethics approval process, I'd like to gather some opinions. What kind of things would you have found useful? Examples are time to have some free-flow chat, learning more about autism, learning some coping skills...? etc..

I'd be really grateful for your opinions! Slight smile

Parents

  • Any support would be better than what most adult-diagnosed autistics get, which is nothing at all. 

    Just the ability to meet others in the same position would be beneficial.

    Information is quite freely available over the internet, but sharing the life experiences of other autistics would be a very good thing.

    I don't think free-flow chat is particularly suitable for autistics, as it is the sort of thing we have difficulty with. Something with more structure would work better, and a plan of activities being available beforehand would also help. Autistics like structure and predictability.

Reply

  • Any support would be better than what most adult-diagnosed autistics get, which is nothing at all. 

    Just the ability to meet others in the same position would be beneficial.

    Information is quite freely available over the internet, but sharing the life experiences of other autistics would be a very good thing.

    I don't think free-flow chat is particularly suitable for autistics, as it is the sort of thing we have difficulty with. Something with more structure would work better, and a plan of activities being available beforehand would also help. Autistics like structure and predictability.

Children
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