In desperate need of advice

Hi, I'm sorry but I need advice badly. For the last nearly two weeks I have been stuck in cycle of extreme anxiety in which I wake up earlier than I normally would shivering as if cold and then feel physically anxious with upset stomach, butterflies, sudden shivery chills, and a dry mouth that makes it hard to eat. I  was already having low mood before this. I admitted to my family (I live with my parents) that I was really not feeling well this time last week and we tried to get an emergency gp appointment but all they would do is put me on the days list of people for the Dr to phone and I  ended up waiting until 7pm before getting a call. She said there wasn't much she could do but put my fluoxetine up by 10mg and give me some sleeping tablets. She also sent me a link to self referral talking therapies but told me it would be a wait. I couldn't do much more than agree as I had gotten so tense waiting all day I fell into that mode where you just say yes to appease them.

Last Thursday I broke down and admitted how strongly I am struggling with suicidal urges and we phoned the emergency single point of access number for the local mental health and crisis teams. Someone did phone back quite quickly and booked me an appointment with theocal mental health team for yesterday. They also told us to contact a gp and request a short course of medication to calm me until then. Unfortunately when we tried to follow their advice the gp surgery refused without hearing from the mental health team and when mum phoned the number we had been given for the mental health team they said they couldn't do anything without seeing me and told us to go back to the gp. By this point I had lost any energy to fight so just waited for the appointment on Monday and stuck close to my parents to try and make sure I wouldn't try anything.

Unfortunately yesterday our appointment turned out to be half an hour with a nurse and a student and the nurse just kept saying that "it sounds like it's all down to the autism" He gave me the same self referral links the gp did for the most part and said he'd go speak to the consultant to see if he wanted to see me but then warned me that "we aren't commissioned to handle autism so you might get sent back to your gp". It felt like I wasn't given any help or even any idea of what to expect might be forthcoming, just dismissed and told I would receive a letter in a few days.

What do I need to do for someone to actually help me? I came clean before making an attempt as I desperately don't want to devastate my family, but now it almost feels like they don't really think I am at risk. I'm trying to fight off these thoughts with everything I have but I am gradually getting worn down and spending a lot of time thinking about it and even making plans. They knew from the triage call I have specific plans but because my parents know there doesn't seem to be any real concern. I don't know what to do

  • Hello Kras83,

    I’m sorry you are going through such a tough time and that you aren't getting the help that you need. The NAS website has a page regarding 'suicide' which has links to online communities such as 'Big White Wall' and 'Side by Side' that hopefully will be able to help you. Please check out this link and scroll down for the links to the online communities: https://www.autism.org.uk/advice-and-guidance/topics/mental-health/suicide/autistic-adults

    All the best,

    Karin Mod

  • I really wish I could tell you how to get out of this - I have been *exactly* where you are and it is horrible beyond belief.

    I am not a doctor but I would definitely say take definitely the meds you are prescribed especially getting your sleep in order is a big thing. Let them see you trying first and ask to switch meds if it's not right.

    The basics - eating, hydration, distraction, exercise - focusing on literally just basic living just for now. One day at a time.

    Having your parents at the appointments - to advocate for you and tell some objective truths is a real help. When I had no energy to fight anymore this was critical for me.

    I totally understand the feeling of not having the energy to 'stick up for yourself' at the moment you need to the most. 

    KEEP GOING - it seems that in the NHS world the squeaky wheel really does get the grease - if you have to, phone every day and tell them that you are in crisis. Or get someone to take you to A&E.

  • Some anti depressants including fluoxetine can actually cause nightmares and highly disrupted sleep. My brother had this issue when they put him on Mirtazapine, waking up most nights screaming. One thing you could do is suggest your gp switch you to a different antidepressant. Finding the right anti depressant for a given patient is something of an art and can sometimes take several attempts.

    ultimately your local mental health team is going to have to middle through with out specialist mental autism support, Because there almost certainly isn’t any. If you feel more strong suicidal urges you should present yourself to the local acute mental health team, by phone or even just going to A&E if that’s the only way.

    suicidal tendencies are rightly not to be taken lightly and you shouldn’t feel bad or that you are wasting peoples time by seeking help.