Eating disorder and ASD

Hi,

I have recently received an ASD diagnosis. For the past year I have been having problems with my eating and referred to lots of different people, I am currently with SEDS (specialist eating disorder service). They have been struggling to treat me, and now with my diagnosis they are putting my eating problems down to the ASD and don’t think I have an ED (eating disorder)

For a bit of background, I have always been a “picky” eater but last year when COVID began I started to restrict my intake and became very obsessive with my weight. I am still struggling with my eating, still have bad thoughts and still losing weight. 

The SEDS have now referred me to autism services and are about to discharge me, even though I still have characteristics of someone with an ED. They believe it is all to do with my ASD and wanting control. 

I am putting this post out there to see if anyone has any related experience or advice, anything would be appreciated.

Thanks.

Parents
  • could be normal? .... i mean if you feel your getting fat then the logical conclusion is perhaps to cut back on eating to cut the calorie intake to make a difference that way, otherwise all your left with is the hard work of exercise and thats much harder to do than just cutting a meal here and there isnt it? lol so cutting meals generally is the smart logical easy way that comes to mind for weight loss for anyone really. and yes its a control thing as ofcourse the goal is to control your body weight right? which is reasonable as no one wants to become overweight. when someone else controls what you eat they dont have your body so they dont know and thus they make you fatter with their choice of what you should eat and how much. therefore i dont really see eating disorders as much but rather self maintainance of your own body. ofcourse it becomes problematic when you think your fat but your actually drastically under weight, then i suppose it becomes a disorder. but that is rather one of perception, if you saw yourself in a picture in that situation youd agree that you need more burgers instead lol such as when i was 6 stone myself and feeling fat then saw a picture of my body and saw my back bones sticking out of my shirt which kinda made me feel ok to eat more as i saw that i was clearly underweight.

Reply
  • could be normal? .... i mean if you feel your getting fat then the logical conclusion is perhaps to cut back on eating to cut the calorie intake to make a difference that way, otherwise all your left with is the hard work of exercise and thats much harder to do than just cutting a meal here and there isnt it? lol so cutting meals generally is the smart logical easy way that comes to mind for weight loss for anyone really. and yes its a control thing as ofcourse the goal is to control your body weight right? which is reasonable as no one wants to become overweight. when someone else controls what you eat they dont have your body so they dont know and thus they make you fatter with their choice of what you should eat and how much. therefore i dont really see eating disorders as much but rather self maintainance of your own body. ofcourse it becomes problematic when you think your fat but your actually drastically under weight, then i suppose it becomes a disorder. but that is rather one of perception, if you saw yourself in a picture in that situation youd agree that you need more burgers instead lol such as when i was 6 stone myself and feeling fat then saw a picture of my body and saw my back bones sticking out of my shirt which kinda made me feel ok to eat more as i saw that i was clearly underweight.

Children