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Eating disorder and ASD

Lucy

Hi,

I have recently received an ASD diagnosis. For the past year I have been having problems with my eating and referred to lots of different people, I am currently with SEDS (specialist eating disorder service). They have been struggling to treat me, and now with my diagnosis they are putting my eating problems down to the ASD and don’t think I have an ED (eating disorder)

For a bit of background, I have always been a “picky” eater but last year when COVID began I started to restrict my intake and became very obsessive with my weight. I am still struggling with my eating, still have bad thoughts and still losing weight. 

The SEDS have now referred me to autism services and are about to discharge me, even though I still have characteristics of someone with an ED. They believe it is all to do with my ASD and wanting control. 

I am putting this post out there to see if anyone has any related experience or advice, anything would be appreciated.

Thanks.

Parents

  • this is not the place to ask advice on such a concerning situation. 

    There have been people in this forum with eating disorders as well as Autism. sometimes it considered to be part of autism sometimes its not. I am no expert in this area of eating disorders.  I think at all depends on how serious your condition is, and it can be very dangerous,  and what places are available. 

    If you are of concern ( dangerously underweight )  please approach your GP immediately for professional help / review of your health status.

    give this a go,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,, there is online chat available

    www.beateatingdisorders.org.uk/.../helplines

    here is an article found in "Spectrum" on anorexia and asd

    www.spectrumnews.org/.../

  • in reply to aidie

    This is a major problem that people with eating disorders face in society. Always being told that 'this isn't the place to discuss it'. Why shouldn't we talk about eating disorders, particularly on an Autism forum? They affect so many Autistic people! OP hasn't said anything triggering or distressing or believe me, as a long time anorexia sufferer, I wouldn't be reading this post or commenting! I'd have been out of here without another look!

    Another damaging view is that people are only 'of concern' when 'dangerously underweight'. Eating disorders are of the mind first and foremost, and they are serious well before the sufferer reaches a clinically dangerous weight, if they ever do reach a clinically dangerous weight.

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  • in reply to aidie

    This is a major problem that people with eating disorders face in society. Always being told that 'this isn't the place to discuss it'. Why shouldn't we talk about eating disorders, particularly on an Autism forum? They affect so many Autistic people! OP hasn't said anything triggering or distressing or believe me, as a long time anorexia sufferer, I wouldn't be reading this post or commenting! I'd have been out of here without another look!

    Another damaging view is that people are only 'of concern' when 'dangerously underweight'. Eating disorders are of the mind first and foremost, and they are serious well before the sufferer reaches a clinically dangerous weight, if they ever do reach a clinically dangerous weight.

Children
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