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Eating disorder and ASD

Lucy

Hi,

I have recently received an ASD diagnosis. For the past year I have been having problems with my eating and referred to lots of different people, I am currently with SEDS (specialist eating disorder service). They have been struggling to treat me, and now with my diagnosis they are putting my eating problems down to the ASD and don’t think I have an ED (eating disorder)

For a bit of background, I have always been a “picky” eater but last year when COVID began I started to restrict my intake and became very obsessive with my weight. I am still struggling with my eating, still have bad thoughts and still losing weight. 

The SEDS have now referred me to autism services and are about to discharge me, even though I still have characteristics of someone with an ED. They believe it is all to do with my ASD and wanting control. 

I am putting this post out there to see if anyone has any related experience or advice, anything would be appreciated.

Thanks.

Parents

  • Apparently, it's a common one. The obsessive and sensory aspects of ASC can create eating disorders that may not or may not have a body dysmorphic components.

    I am sorry that they seem to be treating you this way. It sounds like one department passing the buck to the other when they should be working together as both issues are in play. For any therapy to be successful it's going to have to account for the ASC, but do autism services know much about eating disorders? Let's hope so and that they don't keep you waiting long.

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  • Apparently, it's a common one. The obsessive and sensory aspects of ASC can create eating disorders that may not or may not have a body dysmorphic components.

    I am sorry that they seem to be treating you this way. It sounds like one department passing the buck to the other when they should be working together as both issues are in play. For any therapy to be successful it's going to have to account for the ASC, but do autism services know much about eating disorders? Let's hope so and that they don't keep you waiting long.

Children
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