I (36m) was diagnosed with Autistic Spectrum Disorder at the beginning of December. It has been an adjustment. Letting go of expectations of me that are in fact impossible, and trying to behave in a manner that is helpful to me (and figure out that is). I live midway down the country in England, my family live in the North East. About 150 miles away On Saturday, my parents came down to pick up my 6 years old daughters (twins). my dad drove, that was the last time I saw him alive. Early Sunday morning my dad (66) had a massive stroke out of nowhere. On Sunday I travelled up north (with my wife, who is ill atm) and picked up the girls, saw my dad in the ICU and went back down. I knew my mum wanted me to stay up, but neither my wife nor myself brought anything with us to stay, my brothers and my sister and the rest of my family are still there. Monday morning, the stroke consultants saw my dad, did another CT scan and said there was no chance of recovery or survival. For my part. The second I saw him and before I knew he was a goner, strokes have shockingly low survival rates anyway, but my instincts were correct. Last view I had of him was the Nurse checking his eyes and they were pinpricks, that is an indication of the drugs they gave him (which should have left his system long by this time), or severe brain damage as the information is not reaching visual cortex. I didn't tell any of my family this, they're all hoping, I already know the bad news coming Monday and I'm just waiting. I want to take my girls home. I want to be in my home in my safe places. My mum is hysterical. Maybe you're wondering why this in an Autism subreddit? Well it's this. I don't cope well around people, particular my family (mum, brothers , sister etc. etc.) in high emotion, it leads to overload, meltdown, trauma for me. I prefer in these times, normalcy, routine, calm. I realise this now after my diagnosis. That's why I spent yesterday doing a little bit of my dissertation (which I wish I could do more on, this was my plan for the week, get it done, which got severely screwed up) and building lego with my daughters. My mum is apparently in "hysterics" still (brothers description), and also talking about "inappropriate things" - which I take to be about very bad parts of my childhood, which was abusive and violent and would trigger flashbacks in me and could even make me angry (my memories of my childhood are very bitter, and if I'm honest, I'm still angry that my dad never apologised). Couple this with catching what my wife had and have had stomach problems since getting back.
So I'm home, this is my coping mechanism. My brothers have said it is okay apparently. I fear this being used against me later as an attack. I fear that I "should" be there, cannot tell if his is a defence reaction from my masking and mimicking behaviours. I cannot process my own emotions and the cacophony of others would be unbearable. But I worry I "should" be there. My dad is donating his liver and kidneys to someone, this caught me off guard and I find most upsetting. My memories of him did not figure he would do something like that. They took him off the ventilator but he kept breathing on his own for 12 hours, this prevented the Liver or kidneys being used. His higher brain functions are all gone apparently, there is too much brain damage to survive. The body is still going, he is dead, that's my thinking, honestly my thinking is he was dead when they told me, that's how I felt. So, what do I do? How to I process the feeling of feeling I "should" be there but being pretty certain this would be a bad decision and risks my own instability and meltdown?
Additional. Had a phone call from my brother, dad is now dead. Hearing family on the phone being so upset was very difficult to process. Didn't know how to deal or respond.