accepting autism

Hi, I am a mother of a young boy  almost thirteen years old with autism and severe learning difficulties, with high sensory problems.  after getting the diagnosis all those years ago and having to cope with the news i find that as my son gets older its like going through it all again, I love my son more than anything in the world but it is so heartbreaking seeing him grow up with so many problems, i want to be strong for him but I am not strong when i keep crying all the time, i am trying to find him a more suitable school for when he comes out of hospital but even looking at the school websites starts me off. he  has been in hospital for several months while his medication is getting sorted after he had a meltdown.

It has been suggested that he would benefit from a residential school, these schools are miles away, he is so young and i want my son to be living at home with his family who love him, just the thought of him living in care is too much for me to bear, and i never chose to have children to have this happen (leaving home at thirteen)

just wandering how other parents seem to cope without being a blubbering emotional wreck, ive had years to get used to it but feel like i never will.

any advice would be appreciated

sarah

  • Hello Sarah

    Good to hear from you, but very sorry to hear about all of your worries.

    I just thought I would post a link to NAS advice services for you to have a look at and see if you think any of them might be helpful. Even if you just wanted to chat things through with another understanding parent you could try the Parent to parent line:

    http://www.autism.org.uk/our-services/advice-and-information-services.aspx

    Hopefully some of our users will also be along to share their thoughts and experiences too.

    Good luck to you and your family.

    Sandra - mod