May I join you?

Hi.

Let's start with the fact that I am not formally diagnosed and at this stage have no intention to be.

If that is an issue to people in this community, please say so.

On to my reason for being here...

I have wondered for a long time if I may be on the spectrum. However, I've honestly seen all labels as negative and so I never really acted on what I wondered. I recently labelled myself (with certainty) in another aspect of my life, and I've discovered what a benefit a supportive community of people with something in common can be. So I've been led to revisit this potential part of me. I know that it isn't possible for me to say that I am on the spectrum without formal diagnosis, so I'm not looking to claim this as a part of me, but I thought it might help me to join a community where people share some of my experiences, even if I don't have autism.

If that's ok?

My main reasons for thinking that I might, and I hope not to offend with these assumptions:

- I need routine. Anything that breaks my routine upsets me.

- I need my own space. A room for my belongings, cupboards and freezer drawers in the kitchen that are specifically mine. I can't share storage space with my husband without feeling stressed and uncomfortable.

- I need to plan. Spontaneous decisions cause me extreme stress. I need to prepare in detail fo everything, including attempting to plan social interaction to the word (not that life works out like that!). Phone conversations are particularly difficult, as are meetings, as they often put me on the spot too much.

- I have always found social situations extremely difficult. I didn't socialise at school and was known for being silent (and as a result was bullied). As well as needing to 'plan' social situations in my head, I find that when I'm communicating I repeat myself frequently and also jump in at inappropriate times and cut people off. I do recognise that I'm doing this as I notice the facial expressions of those that I'm talking to, so I'm not completely unaware, but I can't control this and I do often only become properly aware after the fact, when I replay the conversation in my head. Also, related to this, I tend to talk about myself too much and forget to ask questions of others/let them talk about themselves, even though I genuinely do care!

- A lot of saying the wrong thing and not understanding why it's the wrong thing, or realising after the fact.

Final info about me:

Married mum of one. Late 20s. Businessperson. Lover of photography.

EDITS:

Something else that may or may not be linked is that I have a very 'bouncy' walk. I didn't realise that this might be something to do with it, but I've now been browsing the forums a bit and this has come up a couple of times. I've always been embarrassed by my walking gait and people sometimes comment on it, but I didn't even think of this as linked.

Ditto, if it's linked, the feeling of being overwhelmed by tasks. I strive for perfection with things like cleaning, but I get overwhelmed trying to work out how to get there and I don't see a middleground, so I end up being unable to do anything. Again, something I've found on a thread or two.

Also how I can't deal with eye contact very well. Particularly in intense conversations where I need to look elsewhere - usually at a screen or, at my worst, hiding under a blanket.

Another addition...how I am unable to socialise for more than an hour or two without becoming uncomfortable. If I visit a friend's house, I tend to start to feel a twitchy need to leave after a couple of hours even if I'm technically 'having a good time'.

Parents
  • Thanks for all of your advice! My career is definitely secure in that I run my own (phone free) business, haha! I never took well to authority and instruction and the broad requirements of a job working for someone else, but love working for myself.

    Only one other concern for me, now, and that is something for me to work through here on the forum in time, I suppose. My concern about 'passing it on', as the implication is that if I am on the spectrum it may be hereditary to some degree. I originally started to look as my toddler is showing signs of social anxiety, which was what triggered me to want to know more about myself. No other signs yet and her eye contact (as well as socialisation with adults) is excellent, so I can assume not, but it is a slight worry now. Still, it's something I can keep an eye on and I hope I can provide the right support if she does show signs.

    I spent some time doing online tests today and received this result for the test that seemed most recommended. I don't know what, if anything, this means for me, but I'm keen to continue learning:

    The Ritvo Aspergers Autism Diagnostic Scale (Revised) is a diagnostic tool developed for use in clinical assessments of ASD. It is lengthier than the AQ-10, but is more accurate in identifying adults with ASD. 
    Score:119
    Your score falls into the range for high probability of ASD (score >= 72), and is therefore a positive result.

    Thank you so much or talking with me and making me feel welcome!

Reply
  • Thanks for all of your advice! My career is definitely secure in that I run my own (phone free) business, haha! I never took well to authority and instruction and the broad requirements of a job working for someone else, but love working for myself.

    Only one other concern for me, now, and that is something for me to work through here on the forum in time, I suppose. My concern about 'passing it on', as the implication is that if I am on the spectrum it may be hereditary to some degree. I originally started to look as my toddler is showing signs of social anxiety, which was what triggered me to want to know more about myself. No other signs yet and her eye contact (as well as socialisation with adults) is excellent, so I can assume not, but it is a slight worry now. Still, it's something I can keep an eye on and I hope I can provide the right support if she does show signs.

    I spent some time doing online tests today and received this result for the test that seemed most recommended. I don't know what, if anything, this means for me, but I'm keen to continue learning:

    The Ritvo Aspergers Autism Diagnostic Scale (Revised) is a diagnostic tool developed for use in clinical assessments of ASD. It is lengthier than the AQ-10, but is more accurate in identifying adults with ASD. 
    Score:119
    Your score falls into the range for high probability of ASD (score >= 72), and is therefore a positive result.

    Thank you so much or talking with me and making me feel welcome!

Children
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