Published on 12, July, 2020
Well i never thought i would be writing on the community pages of NAS...Maybe its one of those last resort things where you think.. its only typing things on a page.. no one really reads it or cares but its sometimes helpful to get it all out.. Hmm not sure...
My son was diagnosed when he was about 10 after years of SEN intervention.. school action then school action plus... got excluded within a week of senior school.. had to home teach him for a year whilst working nights as a nurse whilst waiting for a statement... New school... FABULOUS.. school was great.. they loved him... he did well.. Obviously we had the usual troubles but we dealt with them... Nightmare stages through exams.. did those.. did well.. did A levels.. did well... Went to University AND IT ALL FELL TO PIECES.... since then my son has lived in his room.. doesnt talk.. wont take medication prescribed for depression.. drinks...gets up when we go to bed and goes to bed before we get up.. lives on his computer... does not bath.. wash.. change his clothes or have his hair cut... HES 20 years old... what can i do? GP and others wont talk to me as he is a adult.. Im sure he thinks that if he is not around when we are then hes not a niance or trouble... he cant see that hes ripping me apart.. he barrs his door on his bedroom so i cant get in.. Im really at a loose end..Suggestions on a postcard?
Hi Kev..
Its kind of spooky isnt it that we both have sons in the same position... Im sure you also feel like me and feel so frustrated at the system.. the way things are done and yearn for your son to have a worthwile and fulfilling life.. It all seems so bleak when they wont interact.. I hate the saying you can take a horse to water but you cant make it drink.. Its so true though in our situation.. I love my son dearly.. i understand that life can be harsh and difficult.. let alone being a young man with hormones raging, not understanding whats going on in your life and being able to make sense of it all.... Sometimes i onder if they understand our pain.. Not our aspie kids.. the system and the so called support network.. It was a lot easier when he was younger... For now... all i would like is for my son to talk to me.. Its been 2 weeks now since he started staying in hs room all day and not coming out till we had gone to bed... eating his meal which i leave him and then nothing..
What can you do? i dont really know... i think to myself.. if i contacted the support people... ie NAS or social services.. what more could they do to get him out of his room.. well at the moment i suppose nothing.. The services round here are pretty poor to say the least.. For the time being.. im playing the waiting game.. Hes not stupid.. Im sure he will come round when he is ready.. Its certainly good to know youre not alone