Hello

I am Robert. Our three-year old daughter Valerie has been recently diagnosed with Autism Spectrum Disorder.

She did not begin to show signs until after she was two. Oh, she did not start to walk until she was a year and a half and did not (and still does not talk) and throws tantrums and is isolated and does not repsond to her name.

All along, we were told, she would come along, she would start talking..well, she hasn't. She is also hyper-sensitive to high-pitched sounds. So, we went through a battery of tests -fun-and her hearing is okay beyond the autism-related sensitivity to noise-PA systems affect her badly.

We are in a remote area and finally found a neuro pediatrician, who quickly confirmed our suspicions. Her pediatrician-who was long of the "she is just late" school-finally said, "we can't ignore the signs."

So, we feel we cannot get the help we need here and are contemplating going to America.

I have started a blog to attract attention to our plight and learn as I go as many of you have. I am curious to hear stories, if people have had brain scans done on their children-that is our current debate.

Anyhow, thaks for having me. Here is a link to a blog I wrote https://victoryforvalerie.wordpress.com/2015/05/08/but-she-doesnt-look-autistic/?preview=true&preview_id=3&preview_nonce=1b7bae9a73

Parents
  • Hi Robert, Welcome to the forum :-)

    ABA has come up on the forums and those that have experienced it do not always thanks their parents for putting them it. You can "search the community" to find out more.

    It sounds as though you are devastated by this diagnosis and that you are determined to fix her. Perhaps you are being too pessimistic? Some kids are late with their speaking and then it comes later - some will always be behind in their development. At 3yo it is perhaps too early to imagine how whe will turn out.

Reply
  • Hi Robert, Welcome to the forum :-)

    ABA has come up on the forums and those that have experienced it do not always thanks their parents for putting them it. You can "search the community" to find out more.

    It sounds as though you are devastated by this diagnosis and that you are determined to fix her. Perhaps you are being too pessimistic? Some kids are late with their speaking and then it comes later - some will always be behind in their development. At 3yo it is perhaps too early to imagine how whe will turn out.

Children
No Data