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Newly diagnosed AUDHD woman aged 60!

Lizloz06

Hi 

ADHD a year ago Autism a few days ago. The only word I can come up with for how I feel is ‘nothinged’  The first words I managed to say after being given the Autism diagnosis were ‘I’ve lost so much’ other than that I don’t remember much of the journey home or anything else the Dr said. 
Im multi diagnosed M.E EDS PoTS for a long time and was diagnosed with BPD/EUPD and GAD. I challenged  the BPD at diagnosis in 2018. 
I’m wondering if there are any late diagnosed people on here like me and particularly women who may have experienced similar? I’d be very grateful to hear. Thank you 

Parents

  • Hi  another late diagnosed man here responding - hopefully helpful nonetheless.

    I can relate to that "I've lost so much" thing - along the lines of "if only I'd known then..." maybe?

    The forgetting the journey home bit too.  Personally I found it a period of pretty intense re-calibration if that makes sense.  Seemed like my assumptions about reality had been shattered - this led to a lot of questioning and analysing and really a sense of having to start again.

    4 years on and I'm still in that "having to start again" on a daily basis - this in my experience has its benefits but also it is still a bit troublesome sometimes.

    W/r/to multiple diagnoses from what I have studied I understand that associations with all the conditions that you list have been at least explored in research.  I don't think it right that I "info dump" (that's an autistic thing that you might have/come across) on you at present as I recall how sensitive I was immediately post diagnosis.  I personally have autoimmune conditions too and many of the other diagnostic labels that have been made could well have been made of me.  Not EDS tho' I appreciate it's more complicated than this but please excuse a light hearted joke about my own flexibility - I definitely can't do the splits no matter how hard I tried!

    Perhaps it is possible to reframe all these diagnoses under an "autism framework" to see that they are not separate issues but potentially all connected.  With this it perhaps marks a shift from" fixing them" to accommodating them as their being part of an individual profile who is autistic.

    For obvious reasons I am unable to offer medical or therapeutic advice in this context however that may be where I would go next under similar circumstances - to do what you're doing now to "pull the pieces together" and get a clearer appreciation of how the pieces of the picture come together to make a whole.  Personally speaking I have found this to be possible but hard work - so I advise take it steady and be kind to yourself in doing so.

    Best wishes

Reply

  • Hi  another late diagnosed man here responding - hopefully helpful nonetheless.

    I can relate to that "I've lost so much" thing - along the lines of "if only I'd known then..." maybe?

    The forgetting the journey home bit too.  Personally I found it a period of pretty intense re-calibration if that makes sense.  Seemed like my assumptions about reality had been shattered - this led to a lot of questioning and analysing and really a sense of having to start again.

    4 years on and I'm still in that "having to start again" on a daily basis - this in my experience has its benefits but also it is still a bit troublesome sometimes.

    W/r/to multiple diagnoses from what I have studied I understand that associations with all the conditions that you list have been at least explored in research.  I don't think it right that I "info dump" (that's an autistic thing that you might have/come across) on you at present as I recall how sensitive I was immediately post diagnosis.  I personally have autoimmune conditions too and many of the other diagnostic labels that have been made could well have been made of me.  Not EDS tho' I appreciate it's more complicated than this but please excuse a light hearted joke about my own flexibility - I definitely can't do the splits no matter how hard I tried!

    Perhaps it is possible to reframe all these diagnoses under an "autism framework" to see that they are not separate issues but potentially all connected.  With this it perhaps marks a shift from" fixing them" to accommodating them as their being part of an individual profile who is autistic.

    For obvious reasons I am unable to offer medical or therapeutic advice in this context however that may be where I would go next under similar circumstances - to do what you're doing now to "pull the pieces together" and get a clearer appreciation of how the pieces of the picture come together to make a whole.  Personally speaking I have found this to be possible but hard work - so I advise take it steady and be kind to yourself in doing so.

    Best wishes

Children
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