38, Autistic and Stuck

Hello all. 

I was diagnosed with AuDHD a few months ago. 

I still have no idea what I am trying to learn. Great- there's a 'label' for me, but the after care and support was so poor, I just feel like I was prescribed with medication and then off on my way. I have been reading books and trying to learn a bit more about myself, other people and the world, but it hasn't been easy. I struggled my whole life- blamed with reckless behaviour, troubled child, teenager and adult, constantly prescribed with anxiety and depression medication since I was 18 years old, and well, the trauma that came with all of that was horrendous. Life was affected and impacted so severely and all I was ever told was take your medication and go to therapy. 

I struggle with my behaviour- I'm offensive to some people, sometimes my loved ones, seen as erratic, and reckless at times. I've been told 'to be normal'. My brain is constantly overwhelmed, which leads to constant fatigue, and the vicious cycle just goes on and on. 

I don't hide that I am neurodivergent, but I do get the odd 'ohhh, so that why you're so weird!' It doesn't bother me, well, sometimes it does, but I wish there was more support, more learning tools and education. I wish life was easier. 

Parents
  • Hi odd_sunflower, and welcome to the online community.  It's great to have you here.

    Getting a diagnosis can be an overwhelming thing to deal with - sometimes we assume it will give us the answers we needed, but in fact it just opens up more questions.  It's good to hear that you're working to understand your diagnosis and how it has affected your life thus far, and please know that you are absolutely not alone in going through this - I am sure many folks in our community can empathise and share in how you're feeling.

    I'd like to direct you to some NAS guidance pages that may be helpful to you:

    Autism and neurodiversity - this page is a great, in-depth resource about autism and neurodiversity in general.

    After Diagnosis - various pages on life after being diagnosed, including how to process how you feel, and what sort of formal support is available.

    Autistic fatigue and burnout - since you specifically mention feeling fatigued a lot of the time, this page may be good to have a look at.

    If you'd like to continue seeking support through counselling or therapy services, I can also direct you to our Autism Services Directory.  This allows you to search for support and services in your area that have been specially tailored for, or adapted to, autistic and otherwise neurodivergent people.

    I am wishing you the best of luck going forward in navigating your diagnosis, and please know that you can always post again and let us know how things are going.

    - Nicola Mod

Reply
  • Hi odd_sunflower, and welcome to the online community.  It's great to have you here.

    Getting a diagnosis can be an overwhelming thing to deal with - sometimes we assume it will give us the answers we needed, but in fact it just opens up more questions.  It's good to hear that you're working to understand your diagnosis and how it has affected your life thus far, and please know that you are absolutely not alone in going through this - I am sure many folks in our community can empathise and share in how you're feeling.

    I'd like to direct you to some NAS guidance pages that may be helpful to you:

    Autism and neurodiversity - this page is a great, in-depth resource about autism and neurodiversity in general.

    After Diagnosis - various pages on life after being diagnosed, including how to process how you feel, and what sort of formal support is available.

    Autistic fatigue and burnout - since you specifically mention feeling fatigued a lot of the time, this page may be good to have a look at.

    If you'd like to continue seeking support through counselling or therapy services, I can also direct you to our Autism Services Directory.  This allows you to search for support and services in your area that have been specially tailored for, or adapted to, autistic and otherwise neurodivergent people.

    I am wishing you the best of luck going forward in navigating your diagnosis, and please know that you can always post again and let us know how things are going.

    - Nicola Mod

Children
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