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Newly diagnosed

Tina

Hi all, I was diagnosed with autism 3 days ago and although I had expected it, I have been in a bit of a mess lately. I'm 66 years old now and I really don't know what to do anymore. I know there is help out there but I don't like going out of my house and I struggle to navigate the Internet as well as having such a bad memory that once I learned of something I forget again. I also can't leave my 93 year old father in the house alone for too long as he has dementia. Does anyone know of an organisation that would come and help me through this difficult time? 

Parents

  • Hello Tina and welcome to this site,

    Congratulations upon your autism assessment.  I am 70+ and only got my assessment 6 months ago. 

    Welcome to this site.  It sounds like you are having tough time. I find this site really useful for information and lots of autism related experiences. I find it a safe place and helpful place with lots of information.  It is good that you managed to get here and you didn't need to leave your house. There is a lot of information on this site and if you have the time, it is worth pursuing. I find other people's experiences of autism give me a feeling of belonging. 

    For adults at least, it appears there is a common response when receiving an assessment. Generally, people feel a bit numb, empty, angry and confused. This is just some of the things and not everyone experiences every one of them. Mainly, I felt empty and a little angry at the loss of so many years and opportunities. However, after 6 months I feel very different. Now I am much more relaxed and happier than I have ever been. In part, this is due to discarding much masking with my partner and also on this site, although old habits die hard. Personally, I do not feel the need to extend this to family and the world at large. More importantly, I no longer feel like I am just fitting in to a world that is rather alien to me. Now, I know I fit into a different world that is autistic. I found this acceptance very important.      

    I am not sure about organisations who can help. Hopefully, the moderators or others may be able to help. Usually, one of the moderators will send you a message with some links to help in the area(s) you have mentioned.

    At least you have made contact with people that have autism or understand about autism, and are helpful.
    Best wishes,
    Oscar

Reply

  • Hello Tina and welcome to this site,

    Congratulations upon your autism assessment.  I am 70+ and only got my assessment 6 months ago. 

    Welcome to this site.  It sounds like you are having tough time. I find this site really useful for information and lots of autism related experiences. I find it a safe place and helpful place with lots of information.  It is good that you managed to get here and you didn't need to leave your house. There is a lot of information on this site and if you have the time, it is worth pursuing. I find other people's experiences of autism give me a feeling of belonging. 

    For adults at least, it appears there is a common response when receiving an assessment. Generally, people feel a bit numb, empty, angry and confused. This is just some of the things and not everyone experiences every one of them. Mainly, I felt empty and a little angry at the loss of so many years and opportunities. However, after 6 months I feel very different. Now I am much more relaxed and happier than I have ever been. In part, this is due to discarding much masking with my partner and also on this site, although old habits die hard. Personally, I do not feel the need to extend this to family and the world at large. More importantly, I no longer feel like I am just fitting in to a world that is rather alien to me. Now, I know I fit into a different world that is autistic. I found this acceptance very important.      

    I am not sure about organisations who can help. Hopefully, the moderators or others may be able to help. Usually, one of the moderators will send you a message with some links to help in the area(s) you have mentioned.

    At least you have made contact with people that have autism or understand about autism, and are helpful.
    Best wishes,
    Oscar

Children
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