Just Diagnosed - not sure what I expected

Hello,

I got my diagnosis approx 2 hours ago, after waiting for about 3 years on the referral list. I knew that there would probably be a lot to deal with emotionally, but most of the things I was told to expect were about feeling relieved, like everything suddenly made sense, etc. I guess there is some of that, but there's also this deep sadness and maybe even resentment.

For context, I'm 32. I first started experiencing depression in my early/mid teens, but wasn't in a supportive environment so it was entirely unaddressed until my early twenties. I first brought up curiosity about an autism diagnosis when I was perhaps 25 or so, but the doctor at the time told me not to pursue it because I 'don't want that kind of label'. I ended up on antidepressants for about five years which I stopped some time last year, but I'm currently kind of concerned about them having sort of fried my brain a bit (I don't know if I feel things like I used to). It doesn't really help that I carry a lot of internalised stigma that I'm trying to undo.

I know this is a support community so I'm not expecting any medical or psychological input, but I guess I'm hoping I'm not entirely alone with these 'resentful' feelings, or feeling like I wasted 15+ years when I could have had answers, or if the paths I took to solve a problem only made it worse because it was solving the wrong problem, especially with the whole 'if only someone had actually listened to me' sort of thoughts that are swirling right now. Did anyone else feel this way, and how did you get over it or deal with it? Is it common?

Sorry if this is a lot, and thank you for any input.

Thanks

Parents
  • Hello, welcome and congratulations on your diagnosis, 

    It seems the norm to be in a somewhat confused and emotional state straight after diagnosis. And 2hrs is pretty straight after!  It might be worth reading some of the many similar responses on this site at least for reassurance. 

    It certainly happened to me. At 70+ I initially felt rather sad and a bit empty at a lifetime of lost time and opportunities. There was a dash of anger but not much.  However, that was 6 months ago and I did bounce back but as a different sort of person. A lot of my worry went and I was much happier and more contented than I have ever been before. 

    Today, my best way of describing this post-assessment feeling is:

    Like having lived with just 1 toy, say a horse, made of numerous Lego pieces. Then one day (your assessment day) it falls apart and  naturally you become a bit confused, angry and lost. Then slowly you realise that you can make numerous different things from your Lego and for ever.  And your world has changed. 

    Best wishes,
    Oscar

  • Thank you for replying. It's reassuring that you feel you bounced back, even if it took a little while. I think 'empty' is a good description for how I feel right now, but with time hopefully that will change.

    I do like the Lego analogy. I suppose to expand on it, I've spent a long time wondering why my pieces don't fit together as easily as everyone else's and kept trying (unsuccessfully) to just bash them into place. Now it's fallen apart I can learn how the pieces actually fit together for me. I'll try to focus on that rather than despairing over the mess of pieces I have right now!

Reply
  • Thank you for replying. It's reassuring that you feel you bounced back, even if it took a little while. I think 'empty' is a good description for how I feel right now, but with time hopefully that will change.

    I do like the Lego analogy. I suppose to expand on it, I've spent a long time wondering why my pieces don't fit together as easily as everyone else's and kept trying (unsuccessfully) to just bash them into place. Now it's fallen apart I can learn how the pieces actually fit together for me. I'll try to focus on that rather than despairing over the mess of pieces I have right now!

Children
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