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Hi everyone

Grrfc

Hi I’m a mum to a 9 year old who finally after nearly 5 years fighting has received a diagnosis of high function autism. 

im really struggling atm with the return to school. It’s only day 2 and im on edge waiting for a call from them. My child can be so sweet and wonderful but he has the same struggles as most other autistic kids and doesnt understand social cues and how to interact and handle conflict. He gets so defensive and shuts down if he does something wrong and makes everything 100 times worse. 

I have had conversations with the school and he does attend the nurture hub. His nurture teacher sees a totally different child to the one his normal teacher sees. I feel the school could be doing a lot more to support SEN kids and teach the rest of the kids about autism and other learning difficulties. I’m lost on how to help my child. 

we are struggling with his anger outbursts at the moment too. We know it’s just him trying to regulate himself and he cannot control it but how we teach him to deal with it we don’t know. 

now I’ve waffled loads I’m off to explore the rest of the community and hope someone has the magic answer to solve all our problems! Lol

Parents
  • Hi Grrfc
    I'm sorry that you are struggling while you wait for the school to contact you.
     
    Unfortunately, many other parents go through similar struggles when the time comes for their children to return to school.
    Knowing what causes distressed behaviour can help you to develop ways of dealing with it. On the National Autistic Society's advice and guidance section about behaviour has practical information and tips to support autistic people: https://www.autism.org.uk/advice-and-guidance/topics/behaviour
    For yourself, the Parent to Parent Emotional Support Service provides emotional support to parents and carers regarding their autistic children/grown-up children. The service is provided by trained volunteers with personal experience as the parent of an autistic child or adult. Our focus is on emotional support and understanding what it is like for you as a parent. We offer empathy, understanding, and a safe space to talk through your feelings and experiences. To request a call, complete a web enquiry form here: https://www.autism.org.uk/advice-and-guidance/help-and-support/parent-to-parent-helpline
    You may like to look at our online advice and guidance which explains more about getting extra help in school, assessments, education plans, reviews and school transport for England, Scotland, Wales and Northern Ireland: https://www.autism.org.uk/advice-and-guidance/topics/education/extra-help-at-school
    The following regional organisations may offer support:
     
    England
    • Every local area has a Special Educational Needs and Disabilities Information Advice and Support Service that can provide information, advice and support to parents and carers of children and young people with SEND, including on exclusions:  https://www.kids.org.uk/sendiass
    • Independent Provider of Special Education Advice is a registered charity that offers free and independent information, advice and support to help get the right education for children and young people with all kinds of SEND: http://www.ipsea.org.uk/
    • Coram’s Child Law Advice service can be accessed through their website or contacted on 0300 330 5485 from Monday to Friday, 8am–6pm: https://childlawadvice.org.uk/information-pages/school-exclusion/
    • Wales
       
      Scotland
       
      Northern Ireland
      • The Children’s Law Centre provides a free legal advice service and legal representation for children and young people: https://childrenslawcentre.org.uk/
      • The NI Commissioner for Children and Young People (NICCY) and their work is focused on making sure children and young people have access to their rights in their day-to-day lives, so they have the best opportunity to reach their full potential https://www.niccy.org/
        SOS!SEN offers a free, term-time, national helpline, staffed by a team of volunteers, to provide next step advice and support on questions and issues parents may have relating to their child’s SEN provision: https://sossen.org.uk/services/helpline/ Their helpline number is 0208 538 3731

      I do hope that this is of help and your child settles into the process of returning to school.  You are doing well to reach out to us and being the best parent you can be. 

      Best wishes.

      Christine Mod

Reply
  • Hi Grrfc
    I'm sorry that you are struggling while you wait for the school to contact you.
     
    Unfortunately, many other parents go through similar struggles when the time comes for their children to return to school.
    Knowing what causes distressed behaviour can help you to develop ways of dealing with it. On the National Autistic Society's advice and guidance section about behaviour has practical information and tips to support autistic people: https://www.autism.org.uk/advice-and-guidance/topics/behaviour
    For yourself, the Parent to Parent Emotional Support Service provides emotional support to parents and carers regarding their autistic children/grown-up children. The service is provided by trained volunteers with personal experience as the parent of an autistic child or adult. Our focus is on emotional support and understanding what it is like for you as a parent. We offer empathy, understanding, and a safe space to talk through your feelings and experiences. To request a call, complete a web enquiry form here: https://www.autism.org.uk/advice-and-guidance/help-and-support/parent-to-parent-helpline
    You may like to look at our online advice and guidance which explains more about getting extra help in school, assessments, education plans, reviews and school transport for England, Scotland, Wales and Northern Ireland: https://www.autism.org.uk/advice-and-guidance/topics/education/extra-help-at-school
    The following regional organisations may offer support:
     
    England
    • Every local area has a Special Educational Needs and Disabilities Information Advice and Support Service that can provide information, advice and support to parents and carers of children and young people with SEND, including on exclusions:  https://www.kids.org.uk/sendiass
    • Independent Provider of Special Education Advice is a registered charity that offers free and independent information, advice and support to help get the right education for children and young people with all kinds of SEND: http://www.ipsea.org.uk/
    • Coram’s Child Law Advice service can be accessed through their website or contacted on 0300 330 5485 from Monday to Friday, 8am–6pm: https://childlawadvice.org.uk/information-pages/school-exclusion/
    • Wales
       
      Scotland
       
      Northern Ireland
      • The Children’s Law Centre provides a free legal advice service and legal representation for children and young people: https://childrenslawcentre.org.uk/
      • The NI Commissioner for Children and Young People (NICCY) and their work is focused on making sure children and young people have access to their rights in their day-to-day lives, so they have the best opportunity to reach their full potential https://www.niccy.org/
        SOS!SEN offers a free, term-time, national helpline, staffed by a team of volunteers, to provide next step advice and support on questions and issues parents may have relating to their child’s SEN provision: https://sossen.org.uk/services/helpline/ Their helpline number is 0208 538 3731

      I do hope that this is of help and your child settles into the process of returning to school.  You are doing well to reach out to us and being the best parent you can be. 

      Best wishes.

      Christine Mod

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