feeling alone :(

My 6yo son has got tourettes syndrome and is currently being assesed for Autism & ADHD, we've got to go back in feb/march time, myself and my husband have had no support, we feel lost and in limbo, had a meeting the other morning & Robert's head teacher said that he doesn't "present" any autism signs at school but then went on to say "oh but he did have a big meltdown last week when he forgot his lunchbag at school and got stressed out about changing things over" and that he keeps on at his school teacher until she has wiped something off on the whiteboard, now to me those are Autism traits because Rob needs structure and routine otherwise he does have a meltdown if he doens't know the how/what/where etc.

His teacher is fantastic, we have a home to school diary to record how he is at school and that he has started to tic more (yay! shows that me & hubs aren't going crazy)

There are other mums at school and that I know out of school who have autistic children but I don't feel like I can talk to them because I feel like I am bothering them.

There is a huge part of me that is very tempted to home school Rob because his social skills are non-existent, he has only got one close friend and I am worried he will lose him because of the lack of social skills

Sorry for the long post

Parents
  • Is there are parents' group near you, either a NAS local or an independent parents group?

    On the Home and Community pages of the NAS website you'll find a little pink map of Briitain that allows you to search services in your area. Put in the area to see what's near. For some reason it sticks London services at top of list, even if you are looking for Maryport or Land's End, but if you scroll down you should find something.

Reply
  • Is there are parents' group near you, either a NAS local or an independent parents group?

    On the Home and Community pages of the NAS website you'll find a little pink map of Briitain that allows you to search services in your area. Put in the area to see what's near. For some reason it sticks London services at top of list, even if you are looking for Maryport or Land's End, but if you scroll down you should find something.

Children
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