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  • [content removed at request of original poster]

  • The condition will only become easier if you understand it more the way to do this is through research and reading it's a big spectrum so everyone has a different life living with the condition but it's all autism alot of people struggle with the socialising in big groups of people.

  • Hi Fiona

    So much you describe fits me too. Diagnosed aged 64, and majorly abused over the years hence diagnosed with C-PTSD. I too cut people off if they hurt me or I judge them dangerous to be with. Groups feel inappropriate for me for the reasons you describe too. I want to sit with equals, similar age, similar intellect, similar socio economic and ethnic groups. It is obvious too much to reasonably expect so although married with a very supportive relationship I cannot keep friends. Either they hurt me and are made history by me, or my inability to read subtexts, hints, body language means I offend them with no idea why. I don’t see autism as this wonderful gift to be congratulated about but a part of the curse complex which has damaged me since birth. 

  • Yeah that sounds familiar, it’s sad but it’s never too late.

    I feel like I’m partially responsible because I didn’t feel safe enough to ever be myself with anyone either. 

    Hopefully things can change for both of us Blush

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  • Hi FionaB and welcome to a place where you'll hopefully feel understood and supported. I just wrote my first post yesterday and I had lots of kind people reply.

    I'm in a similar situation, I got "officially" diagnosed in May at the age of 67. As a child I felt different but for some reason I had high self esteem and quite liked myself. Like you, there were problems being with other people at school and work and I was bullied. 

    I haven't found a local group but I get reassurance from this forum plus a few YouTube channels - professional psychologists specialising in Autism. I learn so much about myself, and fellow autistic people who comment are supportive. If people can't go to a group, or can't find a suitable group yet,  I recommend the YouTube channels I follow.

    I don't know if that helps but I hope so. Take care and feel free to write or comment on the forum, it's brilliant.

  • Hi  and welcome Blush

    I understand what you mean about the group setting being mixed support needs. The group I attend is like this but I’m just glad there is a group I am able to join in my area.

    I must admit I did have reservations when I first joined I did think I didn’t belong there but as I have got to know people more it’s the most relaxed I’ve ever been in a social setting.  Everyone is different but underneath all the differences there seems to be a feeling of authenticity and shared understanding, which I haven’t found anywhere else.

    I realised a few days ago that I’ve never had a friend, I think this may be quite common amongst people with autism but it doesn’t mean we don’t want connection and given time I think it could be easier to maintain a friendship with someone who gets it.

    Wishing you wellBlush

  • I think I understand how you feel, a lifetime of feeling less and different but just not knowing why. I was just given a pamphlet after my diagnosis, I’ve looked locally for support groups, I start to read into them and they then mention support for the autistic person and their parents, oh another child based group.

    I’m okay with levels not being given after a diagnosis, it seems my needs can be different from day to day. I and many here have been told by GP,s that we were depressed and given medication, I found none of it made me feel better. Friends are better in quality not quantity, I do find I need longer periods alone. 

    Welcome and I hope you stick around, I’ve found this group to be the only place where I feel understood and not alone. 

  • Hello Fiona, 

    Looks like I might have the privilege of being the first to reply. 

    I am in my early 70s and have just been diagnosed.  There is an amazing similarity between your experiences and my own.  I too, am taking my time as there is so much to feel and think about. However, I have never felt more generally relaxed and at peace in my life.  Oddly, nothing seems like it has actually changed: the past is another place, the present is very much the same and the future quite unknown. I think that the only thing that has changed is I now have "a new ruler" to measure everything by. So, nearly everything has to be re-evaluated. As I said to someone recently "my shadow has at last caught up with me". I feel that shadow was my autism that was missing from hospital and doctor appointments, work, relationships, friendships, counselling and therapy sessions, etc.  It always kept its distance because I didn't quite know it existed. 

    So, I hope you find this community a good place to be. I do.

    Best wishes for your new future,
    Oscar