Hello ! Mum of newly diagnosed 22 year old here !

Hello everyone ! 

Just wanted to introduce myself I suppose , I'm Samantha , a 45 year old mother of 3 . My middle child , who is 22 , has just been diagnosed with Autism Spectrum Disorder so although its all super new ' officially ' , we've both known for a long long time ! He works full time in IT and is content with his small , secure and safe world and I am so proud of him . I guess I just want to learn how to best support him to live his life - am sure I already have and will in the future , make many mistakes , but I'd like to be the best Mum to him that I can really .

Thankyou for any help and guidance , I really appreciate you all Blush

Parents
  • Hi and welcome to the community! 

    I'll share below the same information that I'd normally share for someone with a recent diagnosis. On which note, perhaps your son might also like to consider joining the community? He can be sure of a warm welcome from us, if he does Slight smile 

    The NAS has a great set of articles focused on "after diagnosis", including one covering how he might feel during the subsequent days / weeks / months, and others covering the kinds of support that he can access. You might both find them helpful as a starting point:

    NAS - How will I feel after receiving an autism diagnosis - includes perspectives from other autistic people

    NAS - Other advice covering post-diagnosis - including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    More generally, the NAS has a host of other great articles - accessed via Advice and guidance.

    Therapy or counselling are often recommended after a diagnosis, as a follow up action for our GPs to arrange. If your son prefers, and depending on where you live in the UK, he might instead be able to self refer for talking therapy on the NHS. 

    Before arranging anything, you might both find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    Finally, I'll just mention a couple of books that I and others have found helpful early on in our post-diagnosis journeys:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

Reply
  • Hi and welcome to the community! 

    I'll share below the same information that I'd normally share for someone with a recent diagnosis. On which note, perhaps your son might also like to consider joining the community? He can be sure of a warm welcome from us, if he does Slight smile 

    The NAS has a great set of articles focused on "after diagnosis", including one covering how he might feel during the subsequent days / weeks / months, and others covering the kinds of support that he can access. You might both find them helpful as a starting point:

    NAS - How will I feel after receiving an autism diagnosis - includes perspectives from other autistic people

    NAS - Other advice covering post-diagnosis - including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    More generally, the NAS has a host of other great articles - accessed via Advice and guidance.

    Therapy or counselling are often recommended after a diagnosis, as a follow up action for our GPs to arrange. If your son prefers, and depending on where you live in the UK, he might instead be able to self refer for talking therapy on the NHS. 

    Before arranging anything, you might both find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    Finally, I'll just mention a couple of books that I and others have found helpful early on in our post-diagnosis journeys:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

Children