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Diagnosis nightmare

maaya

Hi

I just had a private assessment in London which said whilst I scored highly on the ADOS, my mother completed the ADI-R and it came back below the cut off so they said my problems were more due to anxiety and depression not aspergers.  I hated the assessment as the psychiatrist didnt seem interested in what I had to say and consequently I didnt get to explain much about the things i find difficult.  More time was spent with my mother (who is 72) and my husband.  I find it hard to accept an assessment which heavily relies on retrospective information from someone who failed to see a lot of my issues as a child anyway and would always tell me to "forget about it" if an issue arose.

I am wondering if anyone else has experienced this problem?  Has anyone had a second assessment?  I am wondering what the value of this would be as I wouldnt want my mother involved.

I would be very grateful for your thoughts

maaya

Parents

  • Thanks. This has been very helpful. I scored 38 on the online test but from your experiences there's just no way I would get a diagnosis. I'm 66 years old and have come a long way to behaving 'normally'. I make good eye contact, can be witty and really like people. The problem is I get over-stimulated in company and tend to rant. I find it very hard to stop, even when I know that I'm raving, because what I'm saying is usually extremely interesting – to me. Hahaha! I also have accepted long ago that I'm a bit weird, so I want to just be who I am.  Trying to just 'mild down' and exchange meaningless pleasantries doesn't hold much appeal. Why bother? But it has resulted in losing with two brothers and two daughters (the latter in the process of repair, thank God.) But it seems that none of this would add up to a diagnosis that I really do need because I don't last very long in shared housing but can't afford my own place. 

    I guess I'll find out.

Reply

  • Thanks. This has been very helpful. I scored 38 on the online test but from your experiences there's just no way I would get a diagnosis. I'm 66 years old and have come a long way to behaving 'normally'. I make good eye contact, can be witty and really like people. The problem is I get over-stimulated in company and tend to rant. I find it very hard to stop, even when I know that I'm raving, because what I'm saying is usually extremely interesting – to me. Hahaha! I also have accepted long ago that I'm a bit weird, so I want to just be who I am.  Trying to just 'mild down' and exchange meaningless pleasantries doesn't hold much appeal. Why bother? But it has resulted in losing with two brothers and two daughters (the latter in the process of repair, thank God.) But it seems that none of this would add up to a diagnosis that I really do need because I don't last very long in shared housing but can't afford my own place. 

    I guess I'll find out.

Children
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