Diagnosis nightmare

Hi

I just had a private assessment in London which said whilst I scored highly on the ADOS, my mother completed the ADI-R and it came back below the cut off so they said my problems were more due to anxiety and depression not aspergers.  I hated the assessment as the psychiatrist didnt seem interested in what I had to say and consequently I didnt get to explain much about the things i find difficult.  More time was spent with my mother (who is 72) and my husband.  I find it hard to accept an assessment which heavily relies on retrospective information from someone who failed to see a lot of my issues as a child anyway and would always tell me to "forget about it" if an issue arose.

I am wondering if anyone else has experienced this problem?  Has anyone had a second assessment?  I am wondering what the value of this would be as I wouldnt want my mother involved.

I would be very grateful for your thoughts

maaya

Parents
  • The key to adult diagnosis is insistance and repition. The willingness to "make more of a fuss" than is socially normal is considered an accurate diagnostic marker in adult AS assesment. Also, make no effort to normalise your posture/eye movements...let them see the symptoms clearly. 

    Also it helps if you have availiable documentry evidence of childhood integration difficulties: letters/reports from school work nicely, if you dont have any you might contact your old schools and ask if they retain copys.

    If all else fails, get a private diagnosis. The NHS is v reluctant to diagnose for both finacial and socio-political reasons...

Reply
  • The key to adult diagnosis is insistance and repition. The willingness to "make more of a fuss" than is socially normal is considered an accurate diagnostic marker in adult AS assesment. Also, make no effort to normalise your posture/eye movements...let them see the symptoms clearly. 

    Also it helps if you have availiable documentry evidence of childhood integration difficulties: letters/reports from school work nicely, if you dont have any you might contact your old schools and ask if they retain copys.

    If all else fails, get a private diagnosis. The NHS is v reluctant to diagnose for both finacial and socio-political reasons...

Children
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