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Diagnosis nightmare

maaya

Hi

I just had a private assessment in London which said whilst I scored highly on the ADOS, my mother completed the ADI-R and it came back below the cut off so they said my problems were more due to anxiety and depression not aspergers.  I hated the assessment as the psychiatrist didnt seem interested in what I had to say and consequently I didnt get to explain much about the things i find difficult.  More time was spent with my mother (who is 72) and my husband.  I find it hard to accept an assessment which heavily relies on retrospective information from someone who failed to see a lot of my issues as a child anyway and would always tell me to "forget about it" if an issue arose.

I am wondering if anyone else has experienced this problem?  Has anyone had a second assessment?  I am wondering what the value of this would be as I wouldnt want my mother involved.

I would be very grateful for your thoughts

maaya

Parents

  • Maaya, adult diagnosis is very difficult to get and I suppose because much of what can be done is done at an early age it becomes too late as an adult.

    There is no medical test so it's purely behavioural observation and in my case we had a daughter with obvious autism, you know flapping arms the whole deal. Still took well over a decade to get a diagnosis but that was NHS mind.

    If you have enough money I have heard you can buy anything from a Doctor...

    A gluten and casein free diet is reported to be helpful for some people.

Reply

  • Maaya, adult diagnosis is very difficult to get and I suppose because much of what can be done is done at an early age it becomes too late as an adult.

    There is no medical test so it's purely behavioural observation and in my case we had a daughter with obvious autism, you know flapping arms the whole deal. Still took well over a decade to get a diagnosis but that was NHS mind.

    If you have enough money I have heard you can buy anything from a Doctor...

    A gluten and casein free diet is reported to be helpful for some people.

Children
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