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Diagnosis nightmare

maaya

Hi

I just had a private assessment in London which said whilst I scored highly on the ADOS, my mother completed the ADI-R and it came back below the cut off so they said my problems were more due to anxiety and depression not aspergers.  I hated the assessment as the psychiatrist didnt seem interested in what I had to say and consequently I didnt get to explain much about the things i find difficult.  More time was spent with my mother (who is 72) and my husband.  I find it hard to accept an assessment which heavily relies on retrospective information from someone who failed to see a lot of my issues as a child anyway and would always tell me to "forget about it" if an issue arose.

I am wondering if anyone else has experienced this problem?  Has anyone had a second assessment?  I am wondering what the value of this would be as I wouldnt want my mother involved.

I would be very grateful for your thoughts

maaya

Parents

  • Hi

    Thanks for the comment, the assessment was done by a consultant who does specialise in autism and is involved in research so I have no doubt that he is knowledgeable. Its interesting that you say it should not be a black and white test because that was certainly my experience.   I think there was some difficulty because there could be other explanations for my issues ie, my father drank heavily and this made it difficult to differentially diagnose.  It was paid for by our employment health insurance.  

    I was thinking that if I had the diagnosis it would help me understand why I have had so many difficulties and that perhaps they werent my fault.

Reply

  • Hi

    Thanks for the comment, the assessment was done by a consultant who does specialise in autism and is involved in research so I have no doubt that he is knowledgeable. Its interesting that you say it should not be a black and white test because that was certainly my experience.   I think there was some difficulty because there could be other explanations for my issues ie, my father drank heavily and this made it difficult to differentially diagnose.  It was paid for by our employment health insurance.  

    I was thinking that if I had the diagnosis it would help me understand why I have had so many difficulties and that perhaps they werent my fault.

Children
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